PEI

People with idopathic pulmonary fibrosis want drug covered

Patients fighting a rare lung disease want the province to pay for a drug that could extend their lives.

'There are other people who don't have a drug plan and these people can't afford it'

Patients fighting a rare lung disease want the province to pay for a drug that could extend their lives.

Members of the Canadian Pulmonary Fibrosis Foundation met today with P.E.I. Health Minister Doug Currie.

They want PharmaCare coverage for the drug Esbriet. It's the only medicine approved for treatment of idopathic pulmonary fibrosis.

IPF patients typically die of the disease within two to five years of diagnosis.

Islander Garth Matthews has the disease and struggles for breath.

He was at the meeting with the health minister.

“I'm fortunate enough to have a health-care plan that's paying for Esbriet, but there are other people who don't have a drug plan and these people can't afford it,” he said.

“I hate to see them going downhill without the one drug that could slow their progress.”

Seven provinces currently fund Esbriet. P.E.I. is the only province in Atlantic Canada that doesn't.

Comments

To encourage thoughtful and respectful conversations, first and last names will appear with each submission to CBC/Radio-Canada's online communities (except in children and youth-oriented communities). Pseudonyms will no longer be permitted.

By submitting a comment, you accept that CBC has the right to reproduce and publish that comment in whole or in part, in any manner CBC chooses. Please note that CBC does not endorse the opinions expressed in comments. Comments on this story are moderated according to our Submission Guidelines. Comments are welcome while open. We reserve the right to close comments at any time.

now