Thursday September 17, 2015

The One More Thing Mom's Club

The strength of these six women - mothers of children with complex diseases - will inspire you.

The strength of these six women - mothers of children with complex diseases - will inspire you. (Brian Goldman)

Listen to Full Episode 27:29

The One More Thing mom's group is made up of smart, powerful women: mothers of children with complex diseases, some so rare they don't even have a name. These are kids who live on borrowed time, and whose needs would test anybody's resilience. These moms gather at each other's homes to share stories, give advice and to lean on each other for support. 

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The group's name "One More Thing" is a dry reference to the fact that there's always one more thing they need to do for their kids.

Brian joined a meeting of six of the One More Thing moms in a living room in suburban Ottawa: Stephanie Paravan, Karen Belaire, Emma Gofton, Julie Drury, Kim McLeod and Mindy McHardy.

The One More Thing moms are so compelling that we have posted the entire unedited conversation below. Even if you've heard the episode, it's well worth a listen.

As mothers of kids with complex health problems, their hard-won wisdom is being put to work to help make our health-care system better. The suggestions that come from this group are being taken seriously by the system.  In the weeks ahead, Brian will travel back to Ottawa to visit Children's Hospital of Eastern Ontario - where they've started a ground-breaking clinic just for kids with complex illnesses.