Living with Ehlers-Danlos Syndrome
Imagine one day your shoulder or hip suddenly pops out of its socket for no apparent reason. You feel crippling pain all through your body - but no one is able to tell you what's wrong.
It's a scenario several Quebecers have faced and many are still dealing with. Our Townships reporter Alison Brunette has been speaking with several people across the province who suffer from EDS. Pictured left, Catherine and Robert Sones.There are more than seven thousand rare diseases - in many cases they are difficult to diagnose and even harder to treat. In part one, we heard about sisters Catherine and Michelle Sones, who, along with their father Robert, all suffer from EDS. Now, we hear about what happens once a diagnosis is made.
We also find out more about another form of the disease, vascular EDS, and can be fatal. Hear the stories of Gail Ouellette and France-Valérie Roy.
Since we first broadcast these stories, some listeners reached out to us. Quebec City resident Alisha Nicholson posted a comment on our Facebook page, and Alison got in touch to find out more.