HEALTH
Organ donors
Wanted: One kidney, good condition
Last Updated: Monday, June 15, 2009 | 9:14 AM ET
By Claire Brownell, CBC News
Related
Internal Links
External Links
- Canadian Organ Replacement Register (CORR)
- e-Statistics Report on Transplant, Waiting List and Donor Statistics
- Step By Step, organ transplant association
(Note: CBC does not endorse and is not responsible for the content of external sites - links will open in new window)
Like everyone else using Craigslist, Fernando Escueta is looking for something. But it's not a job, an apartment or a bike: He's looking for a kidney donor for his wife.
The ad, posted in the "Volunteers" section of the Vancouver classified ad website, is short, polite and to the point:
"My name is Fernando, I live in Richmond, B.C. My wife is currently sick at the moment and is need of [a] kidney donor. She is using dialysis every day and we are looking for a donor with type "A" blood, must be in healthy condition. Your kindness is appreciated. Thank you for your time."
The Escuetas aren't alone. Desperate people on organ waiting lists across Canada are harnessing the power of the internet to reach out, hoping someone — anyone — will be moved to donate.
Average wait times on provincial transplant lists vary widely, but some are several years long. In 2008, 303 Canadians died while waiting for a transplant. They were among 4,380 on a transplant waiting list, according to the Canadian Organ Replacement Registry.
The only way to jump the queue is to find someone who is willing to donate an organ while they are still alive. Every new tool for connecting people online is a way to reach out to potential donors. People are signing up for organ matching services, creating Facebook groups, and even using Twitter to drive traffic to websites about their plight.
But Jeff Blackmer, director of ethics at the Canadian Medical Association, warns that people who publicize their desperation are easy targets for exploitation. Many people who have used the internet to look for donors have stories about being approached with offers to sell an organ for a price.
Asking strangers to donate organs isn't illegal, but paying them is. Today, anyone looking to make a quick buck from a spare kidney can find potential buyers with a simple web search.
And then there's the argument that finding donors on the web is like cutting in line. Online pleas for organs featuring cute kids and sad stories might inspire someone to donate, but there could be someone less photogenic and web savvy who needs the organ more.
"Access to organs, which are obviously quite scarce, should be made on specific criteria like medical need, time on the waiting list," Blackmer said. "Not on ability to access the internet or advertise your need."
But people looking for donors on the web say as long as there's a chance they might find someone, they'll keep searching. Canadian health officials haven't made any firm commitment to address the problem of long wait lists for transplants and the scarcity of donors.
Donor search tools change, wait lists stay the same
Online organ donation came into the public eye in 2004, when Rob Smitty donated a kidney to Bob Hickey in the first match arranged through the website MatchingDonors.com. The site is run by Paul Dooley, a Massachusetts entrepreneur who also founded the job hunting website CollegeJobBoard.com.
The organ matchmaking website added an extra layer of controversy because it charges a fee for posting a profile. A lifetime profile on the site costs $595 US (about $668 Cdn).
When the surgeon who was scheduled to perform the transplant learned about the circumstances under which it was arranged, he refused to do it. Shortly after the transplant was finally performed, Smitty was jailed for missing child support payments, adding to speculation that Hickey paid him for the kidney.
Today, the controversy has died down and MatchingDonors.com hosts 465 patient profiles. Even though MatchingDonors.com has yet to arrange a successful transplant in Canada, there are 14 Canadian profiles on the site.
Hospitals decide whether or not to accept transplants arranged online on a case-by-case basis. In Canada, the two people are supposed to either have a substantial relationship (being family members, for example), or remain completely anonymous. The potential donor has to participate in a psychological assessment.
Dooley says the service is non-profit. Revenue from profile sales pays for overhead costs and helping donors with things like transportation, he said. He also says 30 per cent of the profiles on the site are hosted free for people who can't afford the full fee.
He said his service hasn't been hurt by Craigslist or Facebook. People are much more likely to find a donor on his website than others, he said, describing the probability of finding a donor as "astronomical."
But Dorothy Escueta, Fernando Escueta's wife, said her husband's free Craigslist posting yielded results.
She was a sales clerk at a cookware store for nine years until she had to go on disability. She has to be on dialysis for eight hours every night because of her chronic kidney disease. This is especially hard for her because she suffers from an unusually low pain tolerance, she said, which means dialysis is particularly hard on her physically.
Escueta reminisced about her life before she had to quit her job and go on dialysis. "I loved the job, I loved meeting people," she said. "I was so active."
Escueta said two potential donors have contacted her since her husband posted the ad. The first person asked for financial compensation, which she refused, she said.
She said the second volunteer seems to be genuinely altruistic, so they're going in for tests to see if the donor's kidney is a compatible match.
In less than a month, Escueta has been more successful than another MatchingDonors.com customer was in a year. Joseph Nachman bought a profile on MatchingDonors.com in 2008 after seven years on Ontario's transplant list, but never found a donor that worked out. He eventually got a kidney through the traditional waiting list.
He described the potential donors he got in touch with through the MatchingDonors.com site as "flakey." They would often stop responding to his emails without explanation, he said.
"I didn't get a very good feeling. It didn't appear the persons were very serious," he said.
Even though Escueta couldn't afford a paid profile, she said people should have the right to use any method they can afford to find a donor.
"If people have the money, why not?" She said.
"You're not hurting anybody."
Broken system
But critics say the practice does hurt people indirectly. Blackmer said that even if there was a guarantee that every online donation was arranged ethically, the practice would still be problematic because it undermines the publicly funded health-care system.
"If the public system is done properly, and if it continues to improve, there's not really a need for a parallel private system," he said.
The problem is that, by many accounts, the public system is not running properly.
Nachman has lived in Europe, Israel and the United States, so he knows a lot about different health-care systems. In his experience, the Canadian system works great - except for its transplant record, he said.
"The system is so broken. I just find it totally unacceptable," he said.
Nachman said Canada should develop a nationally coordinated organ-sharing network. Currently, the transplant lists are run provincially, so a patient in Vancouver wouldn't know if a matching organ became available in Newfoundland.
Canada's donation rate for deceased donors ranks low among developed countries. In 2006, the Canadian Medical Association Journal reported that Canada's rate was 12.8 donors per million deceased, compared to 35.1 per million in Spain and 21.5 per million in the U.S.
The journal warned that it's hard to draw conclusions about these numbers because organ donation numbers are uneven across Canada.
New programs
Every few years, politicians suggest reforms to address the unevenness and improve Canada's donation rate.
Back in 1999, a House of Commons committee on organ donation recommended a nationally coordinated system for organ sharing. But no action was taken. Since then, a number of intiatives have been introduced:
- Peter Kormos of the Ontario NDP has introduced bills calling for presumed consent for deceased donors three times. Under the proposed legislation, people would have to arrange to take their names off a list of potential donors if they were to die. It has never passed.
- A few measures have been introduced recently in an attempt to encourage living donations. One is the Canadian Blood Service's living donor paired exchange registry. The pilot project was announced in February 2009, and is available through hospitals in Ontario, Alberta, and British Columbia. The paired exchange registry works by arranging organ swaps. For example, someone who needs a kidney from a donor with O positive blood might know someone willing to donate with A negative blood. There might be someone else who needs a kidney from a person with A negative blood who has a willing donor with O positive blood. If both pairs signed up for the registry, they would be notified and could potentially "trade" kidneys.
- Another innovative program encourages British Columbia residents to donate kidneys anonymously, the first program of its kind in North America. B.C. was also the first province to reimburse donors for expenses related to recovery time, travel and loss of income. On June 5, 2009 Ontario passed a law that would allow workers to go on "organ donor leave" under the Employment Standards Act.
Nevertheless, average wait times for a transplant in Canada remain dauntingly long. Nachman said he's lost faith in the Canadian transplant waiting list system.
The kidney he received in August 2008 is expected to fail in 10 to 12 years. Since the official provincial waiting list is years long, he says he'll keep his profile on MatchingDonors.com as a backup plan.
Share Tools
Top News Headlines
- Everest victim's husband says family not seeking government help
- The husband of a Toronto woman who died trying to climb Mt. Everest on Saturday says his family is not seeking government help to cover the cost of bringing his wife's body home. more »
- B.C. premier unhappy with disgraced Mountie's transfer
- B.C. Premier Christy Clark says she is not happy with the RCMP decision to transfer a disgraced Alberta Mountie to the West Coast. more »
- Henrique's OT goal sends Devils into Stanley Cup final
- The New Jersey Devils will vie for a potential fourth Stanley Cup in franchise history after completing a six-game series win Friday night over the New York Rangers in the Eastern Conference final, courtesy of rookie Adam Henrique's goal early in overtime. more »
- Employment Insurance review boards to be scrapped
- The federal government is scrapping two review boards used by people appealing decisions made about their employment insurance. more »
Latest Technology & Science News Headlines
- Unloading of docked SpaceX capsule to start Saturday
- The privately bankrolled SpaceX Dragon capsule made a historic arrival at the International Space Station on Friday, and astronauts will begin unloading some of the 544 kilograms of food, water, clothing and other supplies its carrying starting Saturday.
more »
- South Africa, Australia to share world's largest telescope
- South Africa and Australia will jointly host the Square Kilometre Array, which promises to be the world's largest telescope, the international consortium in charge of the project said Friday. more »
- Bonavista, N.L., 'coyote' was really wolf, tests confirm
- Wolves have not been seen in Newfoundland since around 1930 and were believed to have been hunted to extinction on the island, but genetic tests have confirmed that an 82-pound animal shot on the Bonavista Peninsula in March was, in fact, a wolf. more »
- Once-rare argus butterfly thriving thanks to climate change
- Global warming is threatening the existence of many species, such as the giant polar bear, but in the case of Britain's brown argus butterfly, it took a species in trouble and made it thrive. more »
- Yahoo scraps digital magazine designed for iPad
- Yahoo has killed Livestand, a tablet magazine, just six months after its debut on the iPad. more »
Bob McDonald's Blog
Government to shut down unique fresh water research area May. 25, 2012 12:31 PM The Experimental Lakes Area research facility in Northern Ontario is being closed down after 44 years of providing invaluable data to scientists in Canada and internationally, a decision that has stunned researchers and environmental groups.
Quirks & Quarks
- May 26: Before the Lights Go Out May. 25, 2012 4:15 PM A new book, "Before the Lights Go Out: Conquering the Energy Crisis Before It Conquers Us", suggests that the unpredictable, unplanned, ad-hoc way our energy use developed in the past will shape our energy future.
Latest Features
- Aylmer triple stabbing leads to first-degree murder charges
- Everest victim's husband says family not seeking government help
- Reclaiming the dead on Mt. Everest
- Employment Insurance review boards to be scrapped
- Teens share bullying tales in confession booth
- Canada ending 'Buffalo shuffle' for visas, closing consulate
- Brave cat makes epic leap of faith
- What a Greek euro exit could mean for Canada
- Double-lung recipient dances on Ellen show








