Baby Wyatt Scott's family overwhelmed by worldwide support
10-month-old Ottawa baby's extremely rare disorder prevents him from opening his jaw
The family of a 10-month-old baby born in Ottawa with an extremely rare disorder that prevents him from opening his jaw, making it difficult to eat and breathe, say they've been overwhelmed with support from around the world after CBC News aired their story last month.
At the time, baby Wyatt Scott's parents, Amy Miville and Andrew Scott, had just created a website — What's Wrong With Wyatt — seeking advice from anyone who might know something about the congenital trismus.
The attention attracted expert advice from neurosurgeons, chiropractors and other specialists. The family has also received about $5,000 in donations from people and businesses.
"It's almost like they want to find out, just as much as we do, what's wrong with Wyatt. And that's the part that means the most to me," Miville said.
"You don't expect people who don't know you at all to do something like that. ... I didn't think that people would care that much."
She worries she won't be able to return to work when her maternity leave comes to an end, and said the donations ease some of that worry.
'I feel like we're going somewhere'
"I just don't know what's going to happen, so when people donate like that it just takes a lot of stress off," Miville said. "It's not just stressful taking care of Wyatt. It's stressful taking care of the whole family."
The couple has also been contacted by two other families with children suffering from similar problems.
"Even though there are only two cases, possible cases that are similar to Wyatt's, I don't feel so alone," Miville said.
The couple is still sorting through the hundreds of emails, looking for clues that could help their own doctors at Children's Hospital of Eastern Ontario find a cure for Wyatt.
"I feel like we're going somewhere. At least we're just not standing still. We're walking on a path right now," Miville said. "There's no light at the end of the tunnel, but at least we're walking towards something."