Stem cell research guidelines to be proposed at U.S. summit
Last Updated: Monday, September 21, 2009 | 8:29 PM ET
The Canadian Press
The Stem Cell Charter is a collective call to action in support of stem cell research and a web-based, interactive document detailing how that science should be advanced, said lead author Bartha Knoppers, a bioethicist at McGill University in Montreal.
The charter, available in both English and French at stemcellcharter.org, lays out a code of conduct for stem cell researchers aimed at promoting science that is carried out in a responsible, ethical way while protecting people from harm and safeguarding the public trust.
"There have been a lot of spurious claims in this area, people doing the first of this or the first of that, and it not being true," said Knoppers.
For instance, some private clinics in China and other countries say they can cure a number of diseases using stem cell injections, but there is no scientific evidence to back up their claims.
"We'd like to keep it a credible science," said Knoppers. "We'd like to keep it a science that merits public investment and public funding."
People need to know how to "distinguish the real science from the hyped-up private profiteering," Knoppers said.
Signing on and adhering to the charter is one way of doing that, she said.
"It's a wake-up call to scientists to remind them that if they want to work in this field, they have to do so under a scientific code of conduct and it's to reassure the public that this is not the Wild West."
Voluntary charter
The voluntary charter will be presented as part of the keynote address to the summit by Alan Lewis, president and CEO of the Juvenile Diabetes Research Foundation International, one of the organizations that has already signed the document.
Stem cells have the potential to turn into other types of cells and are considered the Holy Grail of regenerative medicine. Researchers around the world are working on using stem cells as the basis for treating debilitating and often fatal conditions, such as multiple sclerosis, blindness, Alzheimer's disease, Parkinson's disease, arthritis, diabetes and spinal cord injuries.
"We all have a vested interest in finding cures and moving them to the clinic," James Price, head of the Canadian Stem Cell Foundation, said in a statement. "This is why we created the Stem Cell Charter. It's something that everyone, whether they are doctors, scientists, policy makers or the general public, can get behind.
"It unifies us in support of this vital area of research."
Ottawa researcher Dr. Michael Rudnicki, president of the Stem Cell Network, said the charter is a vehicle for members of the public who support stem cell research to make their voices heard.
He said the fact it was developed by Canadians reflects the country's leadership in the field.
"Stem cells were first shown to exist in Canada, by [James] Till and [Ernest] McCulloch, and we remain leaders scientifically in the area of stem cell research," Rudnicki said.
"I think often this fact isn't recognized by government. This is an area of clear strategic strength for Canada."
The stemcellcharter.org website also includes videos showcasing 11 scientists from Canada detailing their research using stem cells.
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