A woman from Grande Prairie wants the province to pay for injections that help her son cope with a rare medical condition that causes him pain around the clock.

Noella Richarde's son Ethan, 9, suffers from Job's Syndrome, an auto-immune condition that causes infections, rashes and open sores on his skin.

The condition is so painful he needs to take painkillers and stay in bed.

"My skin is so dry," Ethan told CBC News. "It's dry like an elephant."

Ethan Richarde is shown here in a photo taken last fall when his mother said his condition had improved because of the medication. (Supplied)Ethan started taking the injections in Jan. 2010. Ethan's condition improved so much by September he could play outside, Noella Richarde said.

But in October, coverage for the medication was dropped from Richarde's drug benefit plan.

The $1,400 cost per injection was too expensive for Richarde, a single mother, to pay on her own. The drug is not covered by the province of Alberta.

"My son is declining. He's declining rapidly," she said.

Ethan Richarde's arm has sores caused by Job's Sydrome. (Supplied)Richarde says her doctor has told her Ethan needs treatment immediately.

"If he doesn't receive service soon, he's just going to die a slow death, a very painful death," she said.

A fundraiser by an Edmonton radio station Friday raised more than $25,000 to help pay for treatments which can now resume on Tuesday.

Richarde said Alberta Health Minister Gene Zwozdesky told her a team is now looking into Ethan's case.