Genetic testing company's use of child's image outrages mother Christie Hoos

A Vancouver-area mother and blogger is outraged that a biomedical company used a family photo of her daughter to advertise prenatal tests for Down syndrome without her permission.

Swiss-based Genoma biomedical company used image of child without permission, says B.C. mother

Genetic testing company's unauthorized use of child's image outrages family 2:40

A Vancouver-area mother and blogger is outraged that a biomedical company used a family photo of her daughter to advertise prenatal tests for Down syndrome without her permission.

On her blog, Christie Hoos said she was sitting at her daughter's bedside in the pediatric oncology clinic at BC Children's Hospital when she got a message on her phone from a friend who recognized her child in the ad.

The image had been featured on a massive banner on the side of a building in Madrid by the Swiss-based company Genoma to promote its Tranquility test kit for Down syndrome and other chromosomal disorders.

The ad for the Tranquility test kits was suspended on the side of a building in Madrid, where it was photographed by an outraged Spanish parent of a child with Down syndrome. (soheresus.com)

Spanish parent who spotted the ad snapped a photo of it and posted it online. It then spread around the world on social media before reaching Hoos at the clinic in British Columbia, where her 10-year-old daughter is being treated for leukemia.

"When I saw with my own eyes her sweet face on that ugly banner, it broke my heart. While my girl courageously fights for her life, this company questions whether she has a life worth living. How dare they?!" Hoos wrote in her blog post.

"They insulted and abused my innocent child in their pursuit of profit. They broke faith with common human decency. And the world is watching."

Images removed by company

Hoos said she contacted the company, and it eventually removed the banner and the image from its website.

The company apologized and told Hoos that it believed the image was obtained legitimately from a stock image website, according to reports.

Christie Hoos first posted the image on her blog, which features updates on her 10-year-old daughter's ongoing treatment for leukemia. (soheresus.com)

Hoos alleges the stock image website, which is based in Germany, took the original portrait of her child from her blog after she posted it in March.

"Her photo was stolen. A beautiful shot of her face — one of my favourites, posted on a stock photo website and distributed for free."

While Hoos said at first she felt guilty about putting her daughter's picture online, she now realizes she did nothing wrong.

"Where initially I considered taking all our photos offline, deleting my social media accounts and hiding in my house for the next 10 years, now I'm determined to weather the storm.

"We will not flinch. We will not hide. My daughter is beautiful and her life is worth celebrating."

Christie said her daughter is in her eighth month of chemotheraphy, with 19 more months to go, and the recent events "have been particularly brutal."

"Every small setback takes a toll, but she doesn't let it keep her down for long. She's tough. Tough and sweet and feisty, and a thousand unique qualities all her own. She is the joy of our life."

The family is consulting a lawyer about legal action.

Copyright lawyer Gil Zvulony told CBC News that even though the photo was pulled from a free stock photo website, its use in this context could be grounds for copyright infringement.

Listen to the full interview with Zvulony by clicking on the link in this story.

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