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65_RedRoses

November 12, 2009 1:46 PM

An unflinching look into the life of Eva Markvoort as she battles a fatal genetic disease called Cystic Fibrosis (CF). Tell us what you thought of this film.

Comments

Peter Markvoort wrote:

November 16, 2009 10:58 PM

An amazing film. Eva, you are an inspiration, your new lungs will come again, and take you decades to come. Know that we all love you.

Heather wrote:

November 16, 2009 10:58 PM

Amazing! Eva thank you so much for sharing your story with us. I lost a very close friend to CF just over 5 years ago, after his double lung transplant. I know the pain, and I know the struggles and strengths it takes to get through. You are a fighter, and an inspiration to others out there. I wish you all the best in your health and life, stay strong and never stop fighting! Your story is so touching :)

Jane wrote:

November 16, 2009 10:58 PM

That was a very moving documentary (65_Red Roses) and I shed a few tears. I was saddened at the end to see that Eva was back on the waiting list for another double lung transplant and hope that she gets one. Good luck, Eva - you are a vibrant and strong young woman.

Rob wrote:

November 16, 2009 11:00 PM

Just finished watching this film...my heart goes out to everyone who has been touched by this awful disease.

Terry Basso wrote:

November 16, 2009 11:01 PM

Just finished watching this touching film. Eva's bravery in fighting this disease is remarkable. Besides bringing CF to the forefront she has also inspired my family and I to become donors.

Good luck Eva and keep fighting.

Leigh-Anne wrote:

November 16, 2009 11:01 PM

I would not have seen this documentary if I hadn't been back to Canada visiting my family. The episode literally just finished 2 minutes ago and I have to say that I admire Eva for her courage and determination. I knew nothing about CF until now. On the commercial I googled CF to learn more. I thank the maker of this documentary and Eva for making the world more aware of CF, and how important it is to be a donor. I don't think people realize how important being an organ donor is. This documentary was very well done and I'm glad to be walking away with knowledge.

AC wrote:

November 16, 2009 11:04 PM

Eva, thank you for sharing your person struggles with CF and transplant through 65_RedRoses--an incredible film. Wishing you new lungs soon, I encourage all to consider organ donation, you can register in BC at www.transplant.bc.ca

Amie Carroll wrote:

November 16, 2009 11:06 PM

Just finished watching this documentary and I have not stopped crying. I also have CF and have been battling it for 31 years now. I also had a lung transplant 9 years this Feb. It is so true you defiantly trade one disease for another but I never regret having a transplant. I always thought about doing a documentary to show people the every day struggles of living with CF and thought that you did an amazing job with your story, I had the first Living Lobar Lung Transplant in Western Canada at the U of A in Edmonton, AB. I am very much an advocate for organ donation and would love if Canada could do something more such as Organ Donation registration where someone could go and submit there wishes. Anyways Loved the Document and I hope that Eva you get the second chance that you so deserve.

G wrote:

November 16, 2009 11:07 PM

The documentary was powerful--a fine portrait of this young woman. I wish her every blessing in the trial ahead.

Kimberly Markvoort wrote:

November 16, 2009 11:07 PM

Missing the Markvoorts.

I am sitting in a hotel in Rocky Mountain House Alberta, watching your story of hope on CBC!!! Eva your story has reached so many, what an accomplishment to all involved in the film!! Congrats.

I love you so much Eva Dien.

Keep fighting...

Missing you all, can't wait to be home with you for Christmas! Eva we will have to have a B.C. - Ontario sing along on Skype!!! HA!

Kimberly Dien Markvoort XO

Don DeCecco wrote:

November 16, 2009 11:15 PM

It was very difficult for me to watch this program because my wife and I " lived" it fourteen years ago. Our 25 year old C.F. daughter had a double lung transplant and this documentary made us live through again the trauma of her illness and surgery. Fortunately now, she is quite well, works full time and we have been able to share life with her for these years.

Trinni wrote:

November 16, 2009 11:26 PM

Eva, Nimisha and Philip it was wonderful to see your beautiful documentary again after seeing it at Hot Docs in Toronto.

Congratulations to you all for the awards you received so far. I hope there are many more, and that the film continues inspire people to action to fight CF and promote organ donation.

It is heart-breaking to hear that you are on the donor list again Eva. Good luck with your plight.
Our thoughts are with you. Love to you and your family.

Trinni Franke wrote:

November 16, 2009 11:32 PM

It was great to see you wonderful story again after first watching it at Hot Docs in May.

Congratulations to your and the team for all the awards you have picked up, especially in your home town. The film is a true inspiration and will continue drive people to action to help end the suffering of CF and education on organ donation.

It is truly heartbreaking to learn that you have cronic rejection Eva and have again had to join the transplant list. Our thoughts are with you, and I hope you recover soon.

kimberly smith wrote:

November 16, 2009 11:33 PM

I've been a CBC fan for ~40 years and have never responded in writing to a radio or tv programme. That is, until now. I've just finished watching 65_RedRoses and I feel compelled to tell you how much I enjoyed it. This little doc fulfills every ambition I've ever harboured for the CBC: it's a thoughtful and engaging story about a remarkable Canadian life that I wouldn't otherwise have known about even though I live in Vancouver.

Your team demonstrated incredible respect for and sensitivity to your subjects--patients, family, friends and physicians alike--and I was struck by how your careful and attentive editing allowed the story to tell itself. No melodramatic moments here; instead, you focussed on the everyday, lived reality for those unfortunate souls amongst us waiting for an organ transplant. I can't tell you how proud I am to have the CBC--warts and all, the "Mother Corp" is a national treasure that has my wholehearted support. The CRTC hearings currently underway are cause for concern and your documentary has motivated me to learn more about the issues under consideration. You have my promise that I will express my support of the CBC to the CRTC, my MP, and anyone else who might be interested. Having access to your fine programming is a privilege that I would happily pay for directly and I have often wished that I could make a formal donation to support continued excellence. Thank you, thank you for making such a wonderful film. I applaud you and your subjects for your shared candor and honesty in presenting what is an impossibly difficult situation. Well done!

Respectfully yours,

kimberly smith

Rina wrote:

November 16, 2009 11:43 PM

"You measure a man's greatness by how much it takes to discourage him", Eva's story of unending courage lead me to immediately take action. I talked with my family to share with them the importance of making me an organ donor, should something unexpected occur. Although I have always said I wish to become a donor, and have filled out the back of my Alberta Health Care card to state the fact, I wanted to share with my family why. Eva has a chance although someone else's life was cut short. Having lost my father at a young age to a heart disease, and watching my sister suffer from the same, I encourage others to do the same. Sit with your family and tell them why it's important to become a donor. Although my father and sister's heart disease cannot be cured by transplant, Eva's could, along with many others. What was inspiring about Eva's story was her love. Even in moments where she faced potential death, her last words were of love. I'm grateful she was able to share her story with me. I'm grateful that she's had the last few months to get her life back. And although the documentary reviled she's back on the transplant list, now she's got the rest of Canada's support to get her through. Eva, I hope you know, from this 24 year old to the next, we're fighting for you too. Keep inspiring. There are so few in this world that will change it for the better. Congratulations on being one of them.

Noelle wrote:

November 17, 2009 12:11 AM

Eva is an inspiration to me and our family. Being a mother to a baby with CF, we live everyday as positively as we can, and one day if we hit this road that Eva went through, I know that we will make it through it no matter what comes our way. Eva is an incredibly strong spirit and we are praying for her next transplant to come soon.

Dejan wrote:

November 17, 2009 12:12 AM

Some might have thought about a future cure for Cystic Fibrosis, of the beneficial nature of surgery, or of may diverse topics when watching this documentary. As diverse as the possible topics are, I thought about only one when I watched Eva's story: the topic of the gospel of Jesus Christ. As one could imagine, my favorite part in the documentary was to see the surgeon pray before entering that surgery room. Whether Eva realizes it or not, God, for a specific purpose, granted her a longer life. With both God and life in mind, I believe that someone needs to point Eva to a promise of life that is far greater than any surgery. In the meantime, however, I urge and challenge Eva to start thinking about Christ in her last days because time truly does disintegrate like dust.

Tammy Grover wrote:

November 17, 2009 1:47 AM

I'm sure I'm speaking for alot of people. This show was great for awareness and great for so many families that face and struggle with disease, to know that there is hope for us. I"m a single mother of two children with cystic fibrosis. Eva reminds me so much of my daughter, who is only 7years old. She is a true inspiration for so many.

Hamilton wrote:

November 17, 2009 2:00 AM

Beautiful film. I will never take my health for advantage again. Thanks for making this doc.

Christina wrote:

November 17, 2009 2:00 AM

Congrats to the filmmakers and to Eva, this is a beautiful and inspiring film. The cinematography is amazing.

Julie Hickey wrote:

November 17, 2009 2:14 AM

That was one of the finest documentaries I have ever seen. Keep on fighting Eva. You have so much to give to this world!!!

To the rest of Canada: Make sure you fill in your donor cards.
Julie Victoria, BC

Claudia wrote:

November 17, 2009 2:18 AM

There are not enough strong/insiprational words that can be used to describe this film. Eva is an amazing, vibrant person, one feels lucky to know her via this documentary. Life is truly a gift, a gift that so few us really realize we have been given. I am guilty of not trully realizing how lucky I am to have healthy kids, a healthy spouse and family. The reminder to us all is that the power of family and friends cannot be overestimated as we all charge on forward in our lives.

Lindsay Henkelman wrote:

November 17, 2009 2:31 AM

I just finished watching 65_RedRoses, and thought it was incredible. My heart goes out to Eva and others like her on the transplant list. what an amazing young woman. I am sure this story will get a lot of people taking, and hopefully more donors.

David Heath wrote:

November 17, 2009 2:59 AM

Hello there my name is David , I watched your documentary tonite 65_Red Roses and It moved me in such a profound way, to see it through the eyes of those battling this disease was very powerful , gut wrenching and emotional all at the same time, this was my first time being exposed to this brutal condition, It has opened my eyes to just how important organ donation really is and I am going to register as a donor,To Eva Markvoort you are a beautiful human being, I wish you all the very best that life has to offer and thank you for opening my eyes and hopefully the rest of the world, David

Rodney wrote:

November 17, 2009 3:01 AM

Eva's story is well-crafted documentary, congratulations to the crew. I'm not sure why it had cuts from the original. The courage of Eva and the others involved is thought-provoking and will be inspiring to many.

As a dad of an adult CFer who I am very close to, I watched this knowing it would be upsetting. My daughter was not ready to watch the film, but she asked for it to be recorded. Like Eva, she needs to work through the issues that few at a young age should have to contemplate. As parents, we identified with every moment of Eva and her parents' documented comments, gestures, and even expressions. There is so much to say but it is so hard to find the right words. It was clear that what was captured on film was the tip of the iceberg.

One issue became painfully clear. Eva's (and others') agonizing, extended wait for a transplant is a key aspect of our health system. Time is so much more precious to CFers and those others dependent on transplant organs, than to those with full health. As my daughter recently asked: in an advanced society, why is the default option to be non-donor? For all the words that come as an answer to this question, we need to show just a fraction of Eva's and her family’s courage, and work to change this aspect the system. For Eva, and so many others, it would make a huge difference to change the donor default. Instead of having to make a special effort to register as a donor, we should, when our selfishness or beliefs are strong enough, have to make the special effort to register as a non-donor.

Trevor Umlah wrote:

November 17, 2009 8:12 AM

Thank you CBC for presenting this very real documentary about CF, lung transplantation, and organ donation.

Thank you Eva for giving us this window into your life during your struggle.

Mikael wrote:

November 17, 2009 11:28 AM

I had heard about this documentary being shown a few days ago by my mom from a co-worker and she thought it would be something important to watch.

My girlfriend is a 24 yr/o with CF as well, and what hit home the most for me is that I recognized the CF Ward at St. Paul's as well as at one point Eva had stayed in the very same room my girlfriend was in last Spring. I'm very curious if I had met Eva in passing while we were there.

We deal with many of same issues and luckily it isn't at the point where we need to worry about transplants but we've had discussions/debates on how backwards the country and donor situation is. By the time you're eligible for the list it might be too late and suitability of donor lungs is difficult enough even without lack of participation.

I can appreciate what Eva deals with in life trying to work and complete school, my girlfriend is attempting to finish off her degree and some days can be wonderful and others can be extremely difficult. I admire the drive and personal strength it takes to go through that every day.

I'm thankful that Eva shared her story as it allowed some friends and family of mine to really see and understand a lot of daily struggles that my girlfriend fights through, all I can do is support her as best I can and I commend Eva and her family for fighting through it all.

Ken Donohue wrote:

November 17, 2009 12:09 PM

Indeed a remarkable and inspirational film. If you are interested in learning how to become an organ donor in your province, visit www.transplant.bc.ca/Canada.htm

Trish O'Doherty wrote:

November 17, 2009 1:03 PM

I have never been so touched by a documentary! What a journey for Eva's family and friends....but what an amazing spirit Eva herself has. There is a special young man and his folks I love ...he has CF and is the reason I was led to fill out organ donor card...and funraise/walk each year. This show has hopefully brought a greater awareness about CF...and the need to sign donor cards NOW! God bless you and your family Eva...hang in there. A truly awesome piece.

TF wrote:

November 17, 2009 5:47 PM

Red!
The wait was worth it! I loved it so much, and I was a mess for the whole hour and afterwards. I'm sad you never made it here to Ontario but I'm glad you are being surrounded with family, friends, and now the love of all of Canada (and soon the world!) Can't wait until I see you again. Enjoy my artwork!
TF

Nana Linda wrote:

November 17, 2009 6:00 PM

Dear Eva, Your spirit and beauty is very inspirational to me on this day. I was blessed with a wonderful grandson named Kaiden a month ago and he has CF. Kaiden was also blessed with very wonderful parents who I know will be very strong for him. You have truely given me hope and I wish you well Eva. Thank-you for doing this show for us and I would like to send you 65 billion hugs and kisses to go along with your 65 roses. Sincerely Linda from Ont.... ox

Heart Transplant Mom in Ontario wrote:

November 18, 2009 6:38 PM

Wow! What an amazing story. Thanks so much for sharing your journey with us Eva! I am mom to a 4 year old girl who received her gift of life, a heart, when she was only 7 months old. It gives me a fresh perspective to see someone older go through the transplant journey as I know one day she also will likely face another transplant. The donor families truly are the heroes in our stories. By sharing your story, you have not only honoured these heroes, but also brought awareness to the need for organ donation. All the best Eva!

Andrew Johnson wrote:

November 19, 2009 4:54 PM

65_RedRoses will air again on The Passionate Eye on on CBC News network on Sunday Nov. 22nd at 8pm Eastern Time. Please adjust for other time zones: 8pmET is 5pm in British Columbia or 6pm in Alberta or 9pm in the Maritimes and so on.

Grant Turner wrote:

November 21, 2009 11:58 PM

I really enjoyed this film. I cried. I worried about Eva. I empathized with her parents and rejoiced with them too. The pager went off and I was so happy. I love the creativeness of 65_Redroses. I loved the compassion that Eva showed. I loved the characters of her CF friends, and the opportunity to meet them, and see two of them meet. The Dr. was so real and compassionate and smart and gifted. The support system example and lesson expressed by Eva was a great point. The suffering Eva had to go through was difficult to watch, but part of her reality. I have my own 20 year old daughter and 17 year old son. The film makers did a fabulous job. It was so nice to watch. So Thankyou to all involved. I wish the lungs would just work for 50 plus years. I sign donar cards, and will continue to. I am healthy, and my problems are small. This show helped me put that in perspective. Bye for now.
Grant with new Inspiration.

Brenda Barham wrote:

November 22, 2009 9:23 PM

Dear Eva, My husband and I shed a lot of tears as we watched your journey this evening. I received a kidney and pancreas transplant 5 years ago this month and identify so clearly with much of what you...and your parents had to say.
You summed it up well when you spoke of making the decision to accept a transplant...the "What if's ?" were endless for me as well. But once dealt with...it was showtime !
I write to my donor family now and then, to assure them that i am both respectful and grateful for the decision they made to give me the gift of life.
I volunteer for The Kidney Foundation and organize a great "awareness" raiser each spring called the Living Green Ribbon. to promote organ and tissue donation. This spring, I will have you in my heart.
Hoping for a transplant soon for you.

Emily wrote:

November 23, 2009 12:04 PM

Hello, my name is Emily, and I am also a Cystic Fibrosis patient. Thank you Eva for letting the world hear your story, you have brought so much of what we all go through to reality. It is a game of 'what ifs?' and an almost constant fear that tomorrow we may wake up sick and literally in bed for weeks w/o warning. Our reality is sometimes surreal. You are an inspiration! I have never been more driven to stay healthy than by watching your story. I am not on the donor list, and luckily have good lung function. But as you said, I have many CF friends who I have seen suffer, and win and others who have lost their battles. Thank you Eva for your unwavering strength and spirit, and for sharing your story with the world and bringing a face to CF. The best of luck and health in everything you do in the future! XO

Sue Brennan wrote:

November 23, 2009 5:54 PM

As the mother of a 19 year old with CF I was very inspired by you Eva. You gave us a glimpse in the future of what can happen. CF us such a difficult disease to predict. Very emotional documentary for me. My wishes are with you and your family.

jac wrote:

April 2, 2010 8:03 AM

God bless... This was a very sad but yet inspiring documentary. I shed many of tears and my heart goes out to those so young that have to face such pain. If I could, I would offer up part of my life so they could have a part of the opportunities that I have had on this planet. Its not until ones life is almost taken away that one actually realizes how fragile we are as a creature, how fast it can be taken away and how we should all cherish life to its fullest each and every day. We are all here to enhance this planet, to offer help where we can and to respect this beautiful fragile planet.
I have signed my donor card and if the day comes that my time is up, I surely hope that someone else may be able to enhance their life over my loss. I hope.

Great documentary.
And, may the pain and loss be subdued on Eva's family knowing that this documentary has offered up more lives to be saved by exposing the need for donors.

god bless those that need help. Please let others know... so we can help as best we can. Life is so short and our time here limited, make the best of it for all you can every day.

Jeremy wrote:

April 4, 2010 11:05 PM

I watched this documentary just the other night. Although it was 3am and I had no business staying up, I could not turn it off. I was very ignortant towards CF and Eva's story has shed light on the disease and the heroic battles that those who are born with it face.

She is an inspiration to all those with CF and all those who don't. She has made me appreciate the health that I have and equally importantly to immediately become an organ donor. If any of her family members are to read this, know that she will continue to impact those who did not know her.

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