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The Boy Inside

March 28, 2007 9:44 AM

Filmmaker Marianne Kaplan turns the camera on her own family, creating a rare and intimate first-hand portrait of living with Asperger Syndrome (AS)-a form of high-functioning autism characterized by socially and emotionally inappropriate behavior, and an inability to interact successfully with others.
The film follows Kaplan's son Adam as he makes his way through Grade 7.

His condition creates many challenges for him among his schoolmates and he is painfully aware of his separateness, "I have no clue, really. Am I retarded? That's how kids make me feel. I don't like having Asperger's. I don't like being considered different."

Tell us what you thought of Adam's story.

Comments

Michele Whiting wrote:

April 2, 2007 1:15 PM

I am mother of two boys, one with High Functions Autism and the other with Aspergers Syndrome. I was wondering how I could get a copy of Marianne's movie.

It's truly amazing story of day to day life for so many of us.
Thanks for your time!!!
Michele

Amanda Rasmussen wrote:

April 3, 2007 11:28 AM

I am a mom of a five year old with HFA and I just watched the video clip and have tears pouring down my face! Thank you for creating more awareness! Amanda

Marc Poirier wrote:

April 3, 2007 10:49 PM

We are the parents of a 19 years old boy with asperger syndrome. Alan remind us so much about our son's childhood

Since the beginning, my wife insisted that we respect his natural talents and interests and discover that he loved drawing and maps of all kinds. He pursued his talents and developped his education along this way.

We request help from the schooling system and convince them to respect our son's situation. He always went to regular school. My wife taugh him how to cook, to sew and other life necessary hability that they don't teach in school.

We live in montreal and he now lives in ottawa in is own appartment where he goes to college. He has a small group of friends and students who he has contact with.
He has a driver's license, a high school diploma in industrial drafting and is on his second year in college pursuing a diploma in geomatic. He's also thinking about university and we are convince that with his great grades he can go if he wants to.

We have great confidence in him and know that someday he's going to do great things.


Marc and Chantal
parents of Pierre-Yves

Max Sellinger wrote:

April 3, 2007 10:57 PM

I just watched this for the second time. I think this should be required viewing in every school.

Barbara wrote:

April 3, 2007 10:58 PM

I have a 17 yr old son, just diagnosed a year ago, with AS and also with NVLD.

His problems are not as severe as Adam's and that gives me hope but the social problems especially are there.

What I got mostly out of this film was that fact that I as a parent am not alone in my feelings. The range between despair and hope. Wondering if an end will ever be in sight and wondering how I can let go.

Renee wrote:

April 3, 2007 11:00 PM

This show was exactly how my son was to the tee! My son is 8. They never diagnosed him with aspergers in the beginning, but he has been confirmed as a diagnosis of A.S.D. He is in a class room with an aid in regular mainstream school. What I worry about is the social aspect. Anyone here have similar problems of children not interested in playing with their child with autism?

melissa wrote:

April 3, 2007 11:02 PM

I have a 8 year old with high functioning aspergers. I also have aspergers, I am 26. Having Aspergers you just live and you tend to find your own ways of surviving and interacting with others.

My son has been diagnoised for awhile but for many they don't understand because he looks normal.They think I am making this diagnoisis up. It does get fusturating but eventually once you understand that individual with aspergers it is alot easier to bond with them. I go through toys like crazy because he bangs them up all the time. But I am still learning.

Daniel Landry wrote:

April 3, 2007 11:07 PM

I am a child who was born with Aspergers Syndrom and I am 14 years old and find that Adam's feelings and my own are very different. For example, he had said that his life was the worst life, and would not like to have this type of syndrom, as it makes himself feel different.

In my case, i am *exscuse the word* damn proud to have Aspergers. I find it helps me through life. And after watching this movie, i think a little more differently on how this syndrom works on others.

My line for this is "If Aspergers is a rocky road, then i must have all All Wheel Drive." I think its important, this syndrom, as it is a personality, not a problem. And you can all say whatever you want, but i rest my case. As i have learned "You have Aspergers. Aspergers doesn't have you"

Thank you for your time.

Blaine Greenwood wrote:

April 3, 2007 11:08 PM

I am the father of a 21 yr old son who was diagnosed with Asperger's while he was in High School. I highly suspect that I am an adult with undiagnosed Asperger's Syndrome.

Adam's story reminded of my son's life not only within the school he attended but in the family he was raised in ... even his own brothers and sister have a hard time understanding what Asperger's is all about and sometimes feel that it can be forced out of him and I highly suspect out of me, their father.

It is time that society's awareness of the Asperger's Syndrome was increased. We who have it are not "normal" ... we know that ... we however do not wish to be cured or stigmatized.

We do wish for people's understanding and possible assistance at times. I praise my wife for her fantastic attempts to understand us in the place we find ourselves. I wish others would put the same kind of effort into understanding us; as one with Asperger's Syndrome, I am trying hard to understand the society around me.

Thank you CBC for bringing this documentary back to the consciousness of the public through your re-aring of this program.

Brian Jones wrote:

April 3, 2007 11:09 PM

I'm a high school math teacher. I've had three AS students over the years. As a math teacher, these students were a joy to have in class. This doc did a great job of showing the potential of these students and their great personalities. It was also great for everyone to see the struggle these kids have to deal with everyday. Great job

Catherine Henderson wrote:

April 3, 2007 11:10 PM

An emotional and vivid depiction of the way in which Autistic Spectrum disorders affect not only the child but the entire family.

The movie provides no answers but rather underscores the day to day challenges and triumphs of parenting a child with learning disabilities. Adam seems at times deeply aware of his difficulties yet at a loss as to how to change his behaviour.

Alternatingly painful, witty, poignant and at times hopeful the movie is a true testament to the pain and ultimately the power of a mother's love. It should be required watching for educators.

Lori wrote:

April 3, 2007 11:13 PM

I am a mother of a 13 year old boy, who also is in grade 7. The other day my son got invited to a birthday party. Even though he cannot communicate that well, it meant the world to me that he was being included and probably meant the world to my son as well.

More parents should encourage their children to be more accepting of kids with special needs. I hope the parents of Adams classmates talk to their children about their behaviour after seeing this documentary.

John Landry wrote:

April 3, 2007 11:16 PM

Thank you very much!!!! We have a 16 year old son with asbergers syndrome. It is not easy to say the least. It was reassuring to see that we are not the only ones who have to deal with this problem. I can only hope that health ministers accross the country will start to take this problem seriously.

According to some media reports the number of boys being born with asbergers is higher than the number of people who contracted polio during that epidemic. When is the government going to offer support to the parents rather then leaving them on their own. As it is now a large number of these kids only future is foster/correctional care or suicide.

The medical community says they cannot fix the problem and the government is refusing to acknowledge their responsibility for care and training. How bad does this have to get before family services departments and the medical establishment across the country acknowledge and address the problem both in the short and long term. The long-term future of these kids depends on them.

Janice Scott wrote:

April 3, 2007 11:18 PM

I am a mother of a 12 year old boy with Developmental Coordination Disorder/Dyspraxia.

We are leaving special education next year to return to regular junior high. This movie depicts my greatest fears.

I have help for my child now. I fly him to the National Association for Child Development (www.nacd.org) in the United States. They design a home program to specifically address all of his needs/issues which we do every day. Every 3 months, I return for a new program. They have amazing success with children with all kinds of disorders/disabilities especially autism and downs syndrome.

We have been doing this program for only 8 months and my child is pretty much 'reborn'. It is affordable but requires a lot of work on the families part. It has been worth every second and every moment for the child that is emerging and the bond that we now share in our fight for a cure.

After years of weekly therapy within the public system which proved unsuccessful, I am indeed curing my child of an incurable disorder!

I believe not in coping but in hoping... I see Adam in the film, so articulate, so obviously intelligent but I also see neurological dysorganization so similar to my child's but yet individual and different from him. I believe in his ability to overcome.

I belong to a group on yahoo board called dyspraxia families and we have people from all over the world who chime in with the things that they are doing with their children that work/don't work etc. We share our frustrations and our achievements. Please join us.

Anna Murfin wrote:

April 3, 2007 11:18 PM

I cheer with Amanda thank-you so much for making more awareness.

Along with Michele am wondering how I can get a copy of this documentary?

My 6yr.old son has Oppositional Defiant Disorder along with Hyperactivity and Childhood Depression. When I seen the hardship in making friends I empythized with both, mom and child. It really is worse seeing your child being rejected when you know you can't do anything about it. It hurts even more to know that's going to be his life. That people(peers, teachers,etc.) only see a boy acting out instead of a boy hurting.

It warms my heart to know there are other parents out there who feel the same. I think parents should rise together and reach out in being there for each other. If there is any other parents in Lloydminster, AB and surrounding area please e-mail me at, murfin@telus.net so we can support each other and our kids.

Kim R wrote:

April 3, 2007 11:23 PM

I just finished watching The Boy Inside tonight on The Lens and it continues to amaze me how many families are out there dealing with all sorts of unique experiences. I am the mother of a son with Cerebral Palsy who is affected in a variety of ways. Just when I start feeling sorry for myself and missing what my son might have become, I run across a story such as this and the world comes into focus for me!

My son is the light of my life and I truly believe that special children are given to special people -- those that can handle it, whether they believe it every day or not. I found myself nodding my head at alot of Adam's mom's comments. There are more and more of us out there coping - taking one day at a time.

Caroline wrote:

April 3, 2007 11:24 PM

What an absolutley wonderful film. I am the mum of a seven year old son with high functioning Aspergers and I applaud you. Your honesty and willingness to share your story will undoubtedly serve to educate individuals who are in much need of understanding. I would like to purchase a copy or two (my son's school could use a copy!) please let me know how to do this. Thanks so much.

Valerie Gale wrote:

April 3, 2007 11:25 PM

I commend Marianne Kaplan's courage in making such a raw, emotional and personal film. I would love to see the education system incorporate such a film as a teaching tool to foster a greater understanding and tolerance for children with special needs. Just because you cannot see the physical defect, it doesn't mean the child is not broken on the inside.

Janis Jaffe-White wrote:

April 3, 2007 11:25 PM

A must-see for the public in general and for those involved with safe schools issues such as those who volunteer on safe schools committees in individual schools within school boards. It's about time more people recognize that there are real pressing language, social and sensory challenges experienced on a daily basis by students living with autism and that these challenges must be addressed with proactive and positive programming, not reactive and punitive. Indivdual student-related documents such as the Individual Education Plan, Annual Education Plan, Transition Plan, Safety Plan, Report Cards, etc., must be specific in this regard.

Purchasing nicely packaged anti-bullying programs is not the answer. Teaching core values and beliefs on a constant and continual basis is key to changing attitudes and actions towards those who have additional needs. Each and every student matters. It should matter to everyone that all students, including those with autism, feel respected, welcomed and safe within their school community, and beyond. Belonging is not a place; it's a way of life.

Thank you for re-airing this important documentary.

Val wrote:

April 3, 2007 11:26 PM

I never thought any one could come so close to my life. I am a mom of a 10 year old son with aspergers and a 8 year old with something. I wish there was a way for these special kids to get together and celebrate their differences.

Why does different have to be such a big deal. Could life be fun with aspergers. I really miss just having fun. I am so grateful to have a show showing that children with aspergers have feeling too. And how it is for the parents too.

It gets real old people telling you as a mom if you were just something or not something, or you got to get him to... Well if I could I would. I would love be able to get a copy of the show and share it with family. Thank you. Just a mom trying

Marilyn Whiteford wrote:

April 3, 2007 11:32 PM

I have a 10y.o. son with AS and an 8y.o. son with PDD (likely a lesser degree of AS - as told by psychiatrist). Watching this film made me sad, but also made me smile.

It is true that you have to take one day at a time and take what each day brings. As a mother who can empathize, I wish only the best for Adam, his family, and all those who, like me, are muddling your way through. Thanks.

RS wrote:

April 3, 2007 11:34 PM

This documentary was truely amazing. It opened my eye in people whom diagnostic with Aspergers Syndrome. I am in my 20th now. I get picked on sometimes because I am not completely fluent in English.

Because I am more mentally mature, I can ignore people with bully act and doesn't let the bully act bother myself. I believe that people with this syndrome will develop self confidence if they find what they are really good at and keep developing that strength. Because then, they will feel stronger self- worthyness.

Marianne, you are doing a good job is raising the Adam! He just needs time and your attention.

Brianna L wrote:

April 3, 2007 11:36 PM

What a wonderful documentary. Thank you Adam for letting us into your life. I think you are an intelligent and vibrant young man. I encourage you to continue your education into university. I promise you will find people who share your same intrests, who are compassionate and caring. I know that you will make many new friends. Never stop moving along Adam, things will get better.

lenora dulle wrote:

April 3, 2007 11:47 PM

I have just watched the video, wow. I am the mother of an 18yr old daughter with AS. I have just witnessed an exact repeat of my daughter's life in grade 7, except for the fact that she is female.

On a positive note, high school was much easier on her than elementary, and she graduated from regular high school classes. It's 'what's going to happen now' that worries me.

Like Adam we live for the moment. Life has not been easy,but we do pray that some day it will be. Thanks for the video, I would love a copy.

SHERRY wrote:

April 3, 2007 11:49 PM

I had seen a preview of this video a couple of weeks ago & wanted very much to see it. I work with with students with Aspergers Syndrome, so watching this video helped me with many aspects of life for these kids. I wish Marianne, Adam and the family nothing but success with all the places Adam takes them.

Terry wrote:

April 3, 2007 11:56 PM

I am struck by the hell that school was for Adam. I'm also terrified for my 5-year old son with Aspergers. There are LD, PDD and other classrooms available in some places, but there's a need for something more specific with better trained teachers.

I feel that we must insist that school boards create special classrooms for Aspergers kids where they can feel comfortable and have their needs met wherever numbers can possibly warrant it. They have such huge potential and we shouldn't let it be wasted by depression and the other tragic and understandable reponses to being misunderstood, ignored, and bullied.

My son attends a school in the Toronto District School Board. Would other parents be willing to make this happen? If you are, contact me at terry.compton@utoronto.ca Thx

laura okrainec wrote:

April 4, 2007 12:10 AM

I have to say I had a very hard time watching this story. As it is very painfull my husband could not. He says living it is enough for him.

Our son is 15 now. He was not diagnosted untill he was 11, well after his 3 year old brother was diagnosted with pdd. Our lives are like a roller coster ride. So we just do whatever we can to get my boys what is best for them.

I have bad dreams somtimes, but I find its easer for us to just keep going. because its just to sad to think about. I taped this story so I can have my son watch one day. So maybe he won't feel so alone. I hope adam can read some of these comments, so he will know he it not as alone as he feels. He is so much like tyler. Thanks for sharing his life, with all of us.

C.H. wrote:

April 4, 2007 12:11 AM

Adam's story really hit home with our family. My son has Asperger's Syndrome, he is four years old. Every day I worry that I am not doing enough to prepare him for Kindergarten next year. He is already experiencing bullying at his playschool and in the community.

Thank you to Adam and his family for allowing us to peek into your lives and for creating more awareness. Adam, I think you are a very bright and kind young man. Good luck in the future.

Vivian wrote:

April 4, 2007 12:26 AM

I just watched "The Boy Inside" and I must commend Ms. Kaplan for depicting the real life struggle of a special needs child from all of her family's point of view. It was heartbreaking to see Adam without friendships and feeling so lonely when socialization is so important to a child.

Ms. Kaplan you are an amazing mother and Adam was placed in your care because of your patience and strength. I wish you and your family all the best.

Melanie wrote:

April 4, 2007 1:44 AM

An Interesting perspective. I never knew what autism was until watching this film. I became more aware after watching! I like Adam a lot! He's a brave little one-- a very intelligent and charismatic boy.

I still can't help but feel like this doc was lacking something. It was very emotional, but I think there could've been more detail.

Sylvia wrote:

April 4, 2007 1:59 AM

My grandson is 3 years old, diagnosed ADHD but his symptons seem more like Aspergers. Only thinks for the moment, no reason for consequences, still not potty trained, always hits his year old sister, bites and hits other kids, can't seem to socialize with other kids, slower in talking.

Marianne's movie made me cry, this disability sounds so hopeless. Is there any help out there?

caroline hart wrote:

April 4, 2007 2:01 AM

Hi - I am a single mother of four children. None of them have Aspberger's Syndrome. What I saw in this amazing documentary makes me feel as if my everyday concerns are trivial. I would like to help.

I can't offer respite or even shared experience however I am a fundraiser and event manager by profession and I would be happy to offer those services. This film experience has touched my heart. Thank you.

MJ wrote:

April 4, 2007 2:10 AM

it seems to me that if Adam has interests in Baseball, then that would be a good area for him to focus his work/school and future - is there not a way to get him a job/position/volunteer opportunity in some organization that would also work with an autism facilitator to help him integrate and adjust.

Why is he not involved in that area at all? This seems to be a major interest, why not work to his strengths.
what about Mentoring programs?

There are disabled sports programs (note I didn't say Special olympics type) - I'm not advocating that he is disabled, but i am saying if programs exist for that, is there not something for people with his challenge?

Finding an physical outlet where people are rooting for him, would seem to me to be a good environment to be in. Maybe almost like a homeschooling extra curricular class...
what about blogging with other Aspergers kids? maybe they all can help each other - find that they aren't alone... what did you do about tjis situation/that situation.

Does Adam have any insight himself from his soul, what does he think might work?

Just brainstorming - hope some of those help/spark something else.

Blessings.

Carol Marko wrote:

April 4, 2007 2:12 AM

I am a mother of a child diagnosed with Asperger's Syndrome. Thank you for raising awareness of this condition.

My son has been bullied so many times and by people who should have been safe (children of friends, cousins etc.), that it is important to get out to the average population that this is what Asperger's looks like.

Different doesn't mean less and just as all members of visible minorities, all blind people, all those who are deaf, all those who have physical disabilities, and all obese people, are valuable, so are those who behave in sometimes socially inappropriate ways. It is vitally important that we start to teach our children that all people who are different, whether that difference is easily visible or not, are valuable members of society with the right to be here and to be treated with respect.

Autistic spectrum disorders are on the rise and will no doubt continue rising. We need research and the political will to stop this epidemic of children afflicted with this incredibly debilitating problem.

I'm one of the lucky ones. My child is far less affected than Adam. But I still know what Marianne goes through and I know what it feels like to watch your child be rejected. Thank you Marianne and Adam for being so brave as to make a wonderful film for all of us to see.

Lotta wrote:

April 4, 2007 2:14 AM

Thank you for the compelling "the Boy Inside". My friend has a son with Aspergers and his story is very much like Adam's especially the level of outgoingness and the difficulties with peers. That boy is now 22 and graduating from university in a different province than where he grew up. While his road has not been smooth, he is traveling forward and does well in his courses (especially those that interest him, of corse.) His salvation was a fantasy game store where he had a little community of odd folks throughout high school, many older than he. He worked there as a helper in addition to spending his pocket money there.

I have a son with ADD. He is now 30 and has learned that he will always have to manage himself with lists of to-do etc. He is a fabulous guy and an elite athlete. His gift is his tenacity, his optimism and his ability to see the big picture. He is a fountain of ideas and has done well academically.

When he entered his teen age years, we believed he might well end up in jail. I feared the phone ringing with complaints from teachers and parents. I thought my marriage would not take the stress. Now I don't have to worry any more. I hope the same for you. Your Adam needs to get through the next 5 years and then he should have the ability to find his niche, where ever that may be.

I cried when I watched the film. So many memories of those miserable years. If only we knew how "it" would turn out we could be better at living with a more optimistic perspective.

p robinson wrote:

April 4, 2007 2:27 AM

As a mother of a son with Aspergers, I was deeply moved, remembering my sons struggles during my his earlier years.

My son is now 24, and spends most of his time alone, however, he is much happier despite suffering through his growing years, and school in general.

My advice would be focus on his strengths, downplay his weaknesses, and problem-solve how to handle the rest-one thing at a time. Always be prepared to listen, as you the parent, may be the only one who understands what a charming and unique person they really are.

I too would like to know where to get a copy, so that I may be able to share more insight into others.

Randy Inman wrote:

April 4, 2007 2:37 AM

I have been a member of Big Brothers of Victoria for a year and a half. I am certain that my Little Brother is wrestling with the challenges of Asperger's Syndrome, especially after watching the "The Boy Inside".

Any suggestions on how or if I should approach his mom on the subject. She is aware that her son has greater than normal problems in school and in relating to other children. Also, any hints on how I can better relate to this young boy and assist him as he grows would be greatly appreciated.

The documentary "The Boy Inside" was fascinating, insightful and extremely informative for me. Thank you, Marianne, for creating a crucial and socially relevant film.

Anonymous wrote:

April 4, 2007 4:55 AM

I found this film troubling. I know there are people with very difficult behavior issues. But how does it help to label and medicalize problems like this? I urge people to read Daggers of the Mind by Dr. Gordon Warme.

It is politically incorrect to state this opinion, but it appears to me that Adam is being encouraged to misbehave. He gets attention and pity at every turn for misbehaving, and now there is a scientific name for treating those around him without respect: Asperger Syndrome.

The fact that he could suddenly control himself when he called the Hotel desk was quite revealing. I'm not saying that Adam is "normal" or like everyone else. I'm saying that no one is! In any case, I don't see how it could possibly help him to have a camera trailing him around, labelling him as "different".

I find this mother/film maker's motives questionable.

Ivan Lee wrote:

April 4, 2007 5:11 AM

I found this film very painful to watch because of the parents dispair and fear for Adam's future.

On a positive note I was able to view Adam's passion for baseball and computers. Perhaps Adam can find a club of Baseball fans that he can connect with to feed his passion and self esteem.

Many shy ackward people become natural entertainers and I believe Adam has a natural gift at announcing the action as the game is in play.

I would take him to a game and see if he can try it out.His esteem may rocket upward when he shares his passion.For example eccentric Steve Erwin was well accepted and loved by all for his passion!

Janine wrote:

April 4, 2007 10:12 AM

Unfortunately missed this clip, just received information from the autisme society and would like to know if it will be re-airing, or as others have asked (a copy will be available).

My son Daniel 13 years old was just diagnosed 8 months ago, and after 6 years of waiting for a diagnostic, we were both releived as well as in shock. (At least we finally have a name for his behavior and anguish).

I must say every time I see any article on asperger it helps very much to feel less and less alone in our situation.

Documentary Moderator wrote:

April 4, 2007 10:17 AM

This film can be purchased from the filmmaker's website at:

www.theboyinside.com

Leif wrote:

April 4, 2007 10:23 AM

Our 8 year old son has high functioning autism. We were on it early, and have seen incredible progress. But as he completes grade one, its heart breaking to see the social circles forming around him, but to date not including him.

This important documentary highlights the greatest fears of all parents; the social isolation of their children. Its maddening to see mainstream kids with friends, purposely go out of there way to antagonize special needs kids. What causes them to be so cruel?

We fight many battles, but at least we have not had to teach our son how not to be cruel to others. For that we are grateful.

David Heard wrote:

April 4, 2007 11:28 AM

I, personality, skill and behaviour wise are fortunately much more reminiscent of Russell Crowe's real life character 'John Nash' in the award winning 2002 film 'A
Beautiful Mind' rather than Dustin Hoffman's severely disabled character in the other award winning film on mental illness in 1988 'Rain Man' also starring his fictional brother played by Tom Cruise.

Up until recently I have at least periodically mourned my Aspergers Syndrome in a way similar to even the grief and stress that rock icon Eric Clapton had endured first with his years of heroin addiction, and then his four year old's sudden passing that inspired his most successful hit 'Tears in Heaven' in 1991.

I am 37 now and with a combination of highly positive, edifying mechanisms to cope with both the disorder and the ups and downs of my earthly, human existence I usually look at life as glass half full instead of glass half empty. The mechanisms include feeding my spiritual hunger such as by saying the Lord's Prayer and Serenity Prayer, social supports from sources such as various other mental health clients and staff in my city and by the simple fact that maturity is on my side as I get older like most adults.

Holly Musto wrote:

April 4, 2007 11:48 AM

Thank you Adam for sharing your life with us. I was slipped a note from my 7 year old's teacher that this show was on.

My son is in grade 2, has been assessed but not formally diagnosed with Aspergers. "Well there's a little bit of something." I like to say he stands at the line.

My son has several characteristics that I feel make him so wonderful, interesting and unique. I can't imagine him any other way. He is very sensitive and kind, has an amazing memory, and is very bright. He is also very naive and at risk for bullying. I worry about him so much in this regard. It is the hardest thing to see your child treated badly and feel their anxiety and despair.

My son had a horrible year in a multiage grades 1/2/3 where he was in a class with only 1 friend; the rest of the class treated him like he was an alien. He was depressed and suffered low self esteem. Now in grade 2 in a new class with more friends than not, he is my happy, sweet dear boy again.

I don't know what the future holds for us, but I will be there for my son. I may do my own film to show others and offer some insight into Asperger's. Many of us seem to have gained something from the documentary.

D.H. wrote:

April 4, 2007 1:41 PM

My wife and I watched the program twice last night. We both had tears in our eyes. We have a 4 year old son with A.S.

I can not tell you how much I adore my wife for being my son's champion. She knew almost from the day he was born that he was special. She has located every web-site, read every book, and absorbed every document that she can find on A.S. Our long journey with our son through the school system has just begun but with my wife as his champion I know we will get him through.

Thanks Chrissy you are an amazing woman and I am proud to be your husband and Evan's dad.

Adam, I believe you are a smart young man who will make his mark in life. Just remember to thank your mom as she will always be there for you.

Julie O'Bomsawin wrote:

April 4, 2007 3:05 PM

My heart is still aching with the struggles this family had to face. I had no idea about AS and its pain.

I wonder how Adam is doing? If anyone knows of an update being made or any way to find out if he's surviving his day to day please contact me.

I can't stop thinking about him and others that need everyones attention on the matter. We need to educate our children to tolerate such behaviors and be understanding.

Dennis wrote:

April 4, 2007 4:10 PM

We have a 3 year old grandson who was diagnosed with Autism about 1 year ago.

His parents decided that they would get him into private therapy immediately, while he was on the IBI waiting list.
He finally got into the Provincially funded IBI program about 4 months ago, what a huge impact that has had on him.

I lobbied every politician that I could and now we are asking that the Federal Government impliment a National Autism program so that all children will be treated the same. It is a health care issue, as has been said in so many studies, "pay now or pay later."

All voters in Canada must lobby their politicians to get the help that all children deserve.

Christine Trotter wrote:

April 4, 2007 5:07 PM

Just by luck while channel surfing I happened upon The Boy Inside. I thought it was a very moving well done film. I thought that Adam was brillant in how he was able to express his views and the anquish in his life.

It was an excellent way to help others see life from the perspective of someone who has or is affected by AS. Many schools have implemented bully programs, perhaps this film should be a part of that program to help other children and parents be more sensitive to the needs of children who have such disabilities.

After all usually the children who get bullied the most are the ones that are different. All I can say is don't give up Adam. God loves you and made you who you are for a reason - I think this film is just the beginning. I don't know how anyone can watch it and not be touched by it!

Greg wrote:

April 4, 2007 5:13 PM

Thank you to CBC and to Ms. Kaplan and Adam for the opportunity to bring the subject of Asperger's Syndrome out. This program brought back a lot of history.

Particularly poignant for me was the brief description by Adam of his father's emotional breakdown. Somehow there is a difference in the way the genders cope (or don't)with AS and the pressures on a family are enormous.

I am the father of a 28 year old man who was finally diagnosed with AS, complicated by severe learning disabilities, 5 years ago. After the ordeal of schoools with little or no understanding or support resources, his mother still miraculously and to her credit remains a fierce champion for him in the face of systems and individuals with no tolerance for diversity.

As his father, I continue to struggle for ways to be in relationship with our son after so many years of tension and feelings of failure. My wife and I have now been spearated for three years.

The human cost of the lack of understanding and support for parents and individuals living with AS is the tragedy of so many years of not identifying and recognizing AS as a legitimate reality for some people. Look in our prisons. Look at family breakdown. Look at the suicide rate among the young.

A word to "Anonymous" who seems to dismiss so easily the reality of this family's experience under the newly popular banner of "political incorrectness": How do you equate "being encouraged" and getting" attention and pity at every turn for misbehaving" with the isolation from and rejection by one's peer group and sometimes one's family members, the feelings of self-loathing and thoughts of self-destruction, and the knowledge of the agony brought to people you love?

Those who are stronger should be there to support the weaker ones, not blame them. Kudos to the educator who was able to help the young people in Adam's class learn something about this.

Amanda wrote:

April 4, 2007 5:20 PM

Fifteen years ago this child would have been socially awkward, like 1/2 the people I knew in school. They were called nerds back then and their quirks were not disgracefully labeled a disease. This child introduces himself as a victim of Asperger's Syndrome - a label (which his parents have clearly used) that cripples him.

My daughter was misdiagnosed with autism at 18 months old. There was a child with her that had a hearing problem and yet was still placed on the spectrum. One of the therapists said, and I quote, "it is better to be safe than sorry."

We are destroying our children and ruining the lives of gullible parents - we are convincing these children that the trials of life experienced by millions of "normal" kids - no girlfriend, bullying, fights, being ostracized - are because they are sick.

This is a brilliant, sensitive kid that happens to have a really hard time at school. That's it. He'll get married, have kids, go to university. He's funny, he's talented...his biggest obstacle can be summed up by a quote from his mother, "he was so easy to love, back then." Don't make him feel like he has a disease because he can't live up to your expectations.

Ian wrote:

April 4, 2007 5:59 PM

I believe I have A.S. and I tuned into the show a few minutes late not knowing the topic. When the child said he wished he could be dead for a while, then talked about how he felt I said to my wife, "That was me at that age". Then I saw it was about A.S.

The film was frustrating to watch. You want to reach out to the boy but part of having this is the desire to withdraw into yourself. It felt at times the child was the Mother's project more then her son. A task to be dealt with. Kids pick up on that. To know you're a burden to your family must be awful and push you even deeper into yourself.

I was a real mess until a teacher that was worried about me suggested I take an acting workshop when I was 12. It gave me an outlet for both being withdrawn (learning lines and reading plays) and an extrovert (the performances).

Through art and writing and performing I found ways to communicate that weren't standard but did the trick. Still had a problem with eye contact (I still do) but I got by.

I enjoyed drama and writing in grades 8-10 but the rest of the classes were dull and being beaten up by kids almost every day who were looking for someone a bit different to attack (because that age for anyone is awful and having a target takes some of your pain away).

So I'd skip out of class and take a bus downtown and just walk around. I began submitting scripts to a CBC TV show for kids and got some on the air. Then I'd just go to CBC (before they had security guards), go in and use their typewriters. I'd slip scripts under the doors of producers. I became a semi-regular writer and actor on the show and the youngest writer ever with ACTRA the Canadian actor and writer's untion.

I've had a great life and make a very good living as a comedian, writer and actor. I'm very happily married and have great friends. A.S. still is a pain and I have to get into the right "zone" to have a conversation with people. I can't just meet someone on the street and calmly start a casual conversation. I need to warm up first. For this reason I also have a very hard time answering the phone.

If you have a child with A.S. then I say encourage their hobbies and passions. If there are conventions for those hobbies then take them to those but don't pressure them to talk to people. Let it happen at its own pace. This is a slow process.

Candace Perkins wrote:

April 4, 2007 6:03 PM

I cried the whole way through. My son has AS and I can tell you that it is a daily stuggle. Marianne Kaplan is extremely brave to share her life, and that of her family with the world.

Thank-you Marianne, and thank you Adam, for letting us share your life in this way. I'm so grateful that people who don't know about Aspergers have the opportunity to understand through your experiences.

Chris wrote:

April 5, 2007 3:04 AM

I only wish that Aspergers was discovered back when I was a child. For many countless years I felt like an odd ball in society. As much as I tried I could never seem to fit in. I was bullied througout my school years - memories I still carry with me today. Kids with Aspergers are often bullied.

I grew up with little or no friends and had great difficulty with socialization and relations with the opposite sex. It's something I still struggle with today.

I finished my schooling and went off to college. Graduated a few years later and entered the workforce.

I am now 48 years old and only recently became aware that I have this syndrome. My sister works with these kids Stateside and helped to get me diagnosed. It helped me to understand who I am and answered some life long questions that haunted me.

Today I no longer try to be someone i'm not. I accept myself for who I am and in the process learned to love myself. For the first time in my life i am at peace.

I'm not looking for sympathy. I wanted to get my story out and give you the reader a glimpse of what goes on in the life of a person with Aspergers.

Heather Golden wrote:

April 5, 2007 7:24 AM

I unfortunately missed the movie.

I am the proud mother of a 20 year old daughter with AS.
Although the journey raising her was challenging most of the time, reflecting gives you great strength and a good sense of humor.

I would love to have a copy.

Devon wrote:

April 5, 2007 11:01 AM

I am very sorry I missed this Documentary. How can I get a copy? Will you be re-broadcasting it in the near future?

Andrew Johnson wrote:

April 5, 2007 1:19 PM

*** Repeat telecasts of THE BOY INSIDE on THE LENS on CBC Newsworld ***

NOTE: You need to adjust for your time zone

Friday April 6 (late night) at 4am Eastern Time (= 1am Pacific or 2am Mountain or 5am Atlantic Time, etc.)

Saturday April 7 at 9am Eastern Time
(= 6am Pacific, 5am Mountain, 4am Central, 10am Atlantic, etc.)

Sunday April 8 (late night) ) at 4am Eastern Time (= 1am Pacific or 2am Mountain or 5am Atlantic Time, etc.)

As previously noted, to obtain a copy of the film or to contact the filmmaker, please go to: www.theboyinside.com

Thank you to everyone who has contributed to this discussion board about THE BOY INSIDE. All of your comments and observations are very much appreciated.

Andrew Johnson
Commissioning Editor
THE LENS
CBC Newsworld

Tigger wrote:

April 5, 2007 1:24 PM

I too, stumbled across this show the other night. I found it to be such a sad documentary. I was crying for my son, who gets bullied. He doesn't have A.S., not that I know of anyway, but has a lot of the same problems, socially, as that little boy does. It broke my heart in many ways and opened my eyes to what needs to be done for my son. There is nothing more heartbreaking then seeing your child in pain.

Adrienne Winterhelt wrote:

April 5, 2007 2:14 PM

It is as hard for me as it is for Adam's mom to send my 9 year old off to school each morning knowing what may be in store for him. I try to teach my son coping skills but also he is slowly, very slowly learning to change some of his behaviours to set him up for bullying.

You can't fault the other kids when my son in Grade 4 always seems to manage to be too close to another kid when doing jumping jacks or screams at them when he wanted to answer a question or cries when he doesn't get perfect on a test. As a mom, I get sick of my son's behaviour too.

My son certainly identified with Adam. It was in fact my son's death wishes and execution plans at age 7 that sent me seeking help. My two younger daughters are happy for my son that he is not alone in the world.

I used to have to force myself to eat with my kids as most days, the table was more a battleground than a meeting place. It was after the introduction of Omega 3 in our diets that we started laughing at the dinner table. I have discovered my son has a wicked sense of humour.

For me, the movie was painful in that my son lives Adam's life and I don't think it will get easier as he approaches high school.

marianne kaplan wrote:

April 5, 2007 8:57 PM

I am the filmmaker and it's very moving to read the comments and stories from people who watched our film. I had a sense when I started out making the film that it would touch a nerve, and that there likely many families going through what our family goes through.

Little did I realise how much The Boy Inside rings true for so many people. It has been an incredible journey for both Adam and I. To answer the question on everyone's mind- Adam is doing really well these days. At this moment he is playing street hockey with a bunch of neighbourhood boys and then is planning to go to indoorhockey at our local community centre, followed by an hour at a neinghbourhood cafe to watch the Canucks game. Yes, hockey has surplanted baseball as his current passion, although he is still into collecting baseball memorabilia.

Showing the film at festivals and screenings and doing question and answer sessions after has shown us that Adam has a gift for public speaking. In fact talking to a crowd seems easier for him than talking one on one. Adam put it best when asked how things are going for him these days: "There are more good times than bad times." Isn't that the most all of us can hope for?

Bonnie wrote:

April 6, 2007 1:08 PM

I just think that the awareness this film has brought and all the different advise people have given (whether you agree or not)is so fantastic! I love the ones that keep things in perspective and realize we all have different personalities some are just a lot more acceptive . Now the push is to get people to teach their children to love and accept everyone! May God continue to Bless each of you, and may you be open to his blessings! Bon

Carla Stroud wrote:

April 6, 2007 6:06 PM

I watched and saw the parents helping the boy to be more like them. They should teach the young man life skills, and encourage his interests. Great, to the parents for using restbit. The young man needs outside stimulation as much as the parents need a rest. I work with an Aspergers syndrome male 36 years old, and we have a great relationship. I encourage him to develop his interests, and to keep friends, I remind him not to judge others as he dislikes being judged. I remind him that he must take turns when talking so that the other person has a chance to speak also.

I encourage the parents to use the resources that are available to them and their family, and not worry about tomorrow. Maybe they could look at hiring a support worker to work with the boy one or two days a week to take the pressure off of ALL of them.

anna wrote:

April 6, 2007 6:24 PM

What a wonderful film about your child. when I look at adam I see you. The way you talk the way you express yourself. He has modeled himself on you. You are his anchor in this world and of course his best friend. He believes that all his relationships with people will be as those with you. There is absolutly nothing wrong with this. My experience with a child having these problems in elementary school, gave me the ability to see Adam as Adam.

By the way there is a beautiful high school in toronto run by the toronto district school board, that is filled with a special class called scip and which also houses aproximately 125 students who have all been identified. This is a place where each one of the students is equal because they have gone through the elementary system where they were different and made to feel so, but who are in this school and are all equal. Drewry Secondary School should be a model for all high schools in every district of canada.

Of course money should not be brought up as a hindrence to this. Adam should have been made to feel as first a human being in his elementary school. Until the school boards become student centered, things will not change. Until we as parents begin teaching our children, and showing our children about the different types of souls in the world, will we succeed in dealing with the negative energy coming from schools.

Jan B wrote:

April 6, 2007 7:07 PM

I have a nine year old son with Asperger's and I loved this documentary, even though it scared the heck out of me. But reading all these Emailed comments has been a great addition to the experience.

Our son identified himself as 'weird' when he had just turned seven. I was having trouble in school. We hadn't picked up on it, but had the sense to seek some advice. He was tested out as intellectually gifted i some aspects, but also challenged in many social aspects. It was recommended that we seek admission into Alberta's GATE (Gifted and Talented Education) program. If was a tough decision for us, but moving him to a GATE school turned out some unexpected benefits. The teachers were quite familiar with Aspewrger's, and said they typically had 3-4 kids with AS in the Grade 4-6 program at any one time.

Although the social aspects of AS continue to be a daily challenge for our son, we feel blessed that he is in a public school with so many resources and teacher support at hand. I was struck by the number of fellow Calgarians on the COmments list above, and wanted to share with you a bit of the success we have had in the last year, and the support we have found through the Calgary Board of Education. We have a long road ahead of us, and we would very much like to be in contact with other families in our area with sons in the middle school and junior high age group. Burwell.stone@shaw.ca.

Michelle Helou wrote:

April 7, 2007 10:16 AM

Thank you for airing this story, it was well done! I am a mother of a nine years old son who is severely autistic and non-verbal. Everyday is a struggle for these kids, but we as parents must be their advocates so they can get the help they need. These kids have every right to be in school, and the school boards should make sure all staff is properly trained to handle behavioral issues with autistic kids.

Lynne wrote:

April 7, 2007 11:56 AM

I have a 22 year old daughter that has been diagnosed with borderline personality disorder, separation anxiety dirorder ADD, manic depression and is gifted.

Her biggest obstacle in life is her inability to maintain any type of relationship on any level.

She appears to have some of the symptoms of asperger syndrome, should I consider looking further into this and where should I begin.

As a VERY frustrated and concerned parent, I would be grateful for any assistance and/or advice you could offer.

Mental assistance is the hardest of all to obtain and what I find most frustrating of all is when I do manage to get her to a specialist, she gives up on their services.

She is a sad and lonely girl and it breaks my heart.

HELP! PLEASE!!
Sincerely,
Lynne

Susan wrote:

April 7, 2007 6:37 PM

What a movie. VERY moving!

You just feel so sorry and tired for all family members in this documentary (namely Adam and Mommy).

I have a son with ADHD, ODD (oppositional defiant disorder) and anxiety. He has difficulties with his fine/gross motor skills and is currently being testing for learning disabilities (he is making very little progress in grade 1). He is far behind his classmates. He also has no friends and wonders around by himself. He initiates no conversation and has difficulty holding a conversation with anyone other than family. There is some question to aspergers also. MY LIFE IS REALLY HARD and my husband wants to leave us for his own life. He is coping out and leaving me to deal with everything. I have little education, am a stay at home mom and another younger son, whom my 7 year old fights with on an ongoing basis (sibling rivalary???).

I just want to run away BUT DON'T. I am so tired, so lonely, so scared and so worried for my son. Family and friends just don't get it!

Any thoughts?

lewis wrote:

April 9, 2007 1:23 AM

I'm currently working in a classroom & after seeing this documentary im concerned that one of the boys may have this syndrome. He is socially isolated and very sensitive, he is bullied by some of the other children and disliked by the rest. He cries at a whim and reacts with aggression and hostility to the other children. I know he has some kind of emotional problem, but I'm wondering if it might be aspergers. Any others tips on signs of this condition would be helpful as I'm unsure if I should approach the teacher with this. Thank you.

Also, to adam & his family, this was a very touching story. its unfortunate that children can be so cruel but i hope adam realizes people become much more tolerant as they get older, so his university and college years should be something to look forward to.

Derek Kehr wrote:

April 9, 2007 5:19 AM

As much as I know that I have never had to deal with a situation like those parents are facing. I truly believe that it is not the abnormality of the child, but the disability of the culture. Adam is a brilliant addition to the human race. Did you notice how he does not pause as much as his contemporaries, as he follows a clean line of thought and expresses it sharply. One should not be penalised for creating connections faster than others.

Janet Harris wrote:

April 9, 2007 6:18 PM

My 12 year old son was diagnosed with PDD-NOS 2 years ago. I am on a continual journey of learning so that I can do the very best for my son. I would very much like to see this program, and am so sorry I missed it. Please let me know when you will be doing a rebroadcast. I do not have cable, and only have 3 local channels. Can I still view the program under these restrictions?

Eric wrote:

April 11, 2007 3:26 AM

I have yet to see this film. I can tell just by this small clip that Adam is a very bright and interesting young man.

I was adopted and when I started kindergarten the teachers noticed that there were a few strange tendencies about my behaviour. Now you have to remember that this was in the late 60's so a lot of the specialist's did not know about different behavoural disorders. I went to so many, my mother stopped counting .

Anyway eventually my mother just said he is intelligent enough to be in school so I just had to bear the bullyng and remarks of the other children.

I am now 42 and I understand what Adam is going through. I must admit he is a brave boy for not punching someone out when they make fun of him. I sure would but of course that is unacceptable in todays schools. Keep it up Adam and I know you will be able to do whatever your heart desires.

Documentary Moderator wrote:

April 13, 2007 1:22 PM

Thanks for your comments!

You can continue this discussion online at the filmmaker's website:
http://theboyinside.com/index.php?q=forum/1

Bonnie Earl wrote:

April 25, 2007 10:02 AM

I was checking in to the discussion on the CBC site and I feel compelled to help some of those folks who have recently sent entries. But I'm guessing that this is set up so that you could be giving them information.

To Lewis - contact the fraser health assessment network(website below) for info, the same to Lynne, although the network serves children, perhaps they could tell you who to contact for a 22 yr old. It may be your local Provincial Mental Health Office.
www.fraserhealth.ca/HealthInfo/MentalHealth/FHAN.htm

To Susan, there has to be a parent group where you can share your thoughts, and get information and support.

To Janet Harris, I would like to contact you, as I have a 14 yr old boy who is High Functioning ASD and perhaps we could share some info.

Eric Morin wrote:

September 3, 2007 7:22 AM

I just saw the promo for you film and it struck home immediately. Our son also had the grade 7 from hell. Unfortunately, for us this painful year lead to his diagnosis of mild Asperger's just before the end of that year.

The diagnosis helped us helped us as parents understand the behavior, but not the school. Every year has been a challenge. However, we are fortunate as our son is extremely bright and over time is learning to adapt socially. We were told that surviving the social demands of High School would difficult and challenging. This predcition was correct. We were also told that University would be an environment our child would thrive in. I am am both proud and pleased to say that I moved my soon to University yesterday for his first year. There were days I thought we would never get there, but we made it.

Thank you for making this film. It is important. For families, understanding Aspberger's is half the battle. Your film will allow that to happen for others

Thomas wrote:

September 4, 2007 11:03 PM

Adam your are just like the rest of us. You are a wonderfull person and no-one has the right to say the you have issues, there is nothing wrong with you. You are unique in you own way just remember that when you get hassled or harrassed by someone. Just remember that your unique in your own way and you should be proud of it.

Jessica Armstrong wrote:

September 4, 2007 11:04 PM

I just finished watching your film. Parts of it had me in tears. I could completely relate to you. My son is just turned 8. It was suspected he had Aspergers Syndrome. Recently that was ruled out, yet when I watched your story my son has had very simular issues.

He has been in London Ont at CPRI all summer..and although it has been a really great thing for both of us,and he has gained little things that make a HUGE difference...it is school time again...and that has me petrafied. He hasn't been in school since march due to behaviours.

He does not keep friends because he lacks the ability to read social ques..which stems from his central nervous system not being fully developed yet. Although it will catch up by 13..I fear the damage will be done by then. He too cries that he has no friends ect..

I applaud your strenth..and the belief you have in your boys potential. I too am "Team Captain" for my lil man. I have experienced some of the same things as yourself. I guess Im just trying to say..you have a beautiful son..and he is thriving because of the wonderful support and care he gets from you!!

Thank you for sharing your story with me.

Marilyn Lawson wrote:

September 4, 2007 11:05 PM

I just watched the story of Adam for the 2nd time.
This time I didn't watch it with my son Kevin.
The last 9 yrs have been a living hell in my home.
A week in lockdown at Youthdale - because of talking about hurting himself and others.
The psych there made a quarry of Asperbers.
Kevin's life revolves around the PS2 and trying to find a friend.

This past summer I tried to get a complete pshyco-educational testing done on him.

Kevin starts a regular high school this week after being in a segregrated class for the last 3 yrs - can you say we are both scared.

They only did the projected testing - no educational or Asbergers assessment. We do know he has severe dyslexia - like me.

I asked the tester if he even looked at Asbergers and he said no he didn't bother.

How do I get him assessed properly and where do I go?????

At this point I will pay to have him assessed.

Anyone have any ideas?

Nick wrote:

September 4, 2007 11:08 PM

I just saw the documentry and was very moved. I commend both Adam and Mom for their courage in creating this film. Adam your a wonderful young man. Always remember everyone is unique in their way and its society that is limited in its acceptance of differences.

Thank you for making this film. ASD in all forms is becoming so prevalent more education is needed and more support for families.

Rachelle May wrote:

September 4, 2007 11:08 PM

I was moved by this program. My 18 year old son also has Asperger and the early years were filled with sorrow and bullying. We were so greatful when he found 1 friend in grade 7. Although his friend also has a disability, they have each other to play with and for support. I hope that Adam has found that 1 friend because it will make a huge difference in his life. Do not give up hope, these children can bring so much joy if you let them. Thank you for sharing your story.

Robin Manton wrote:

September 4, 2007 11:09 PM

I came across what must be a re-broadcast of Adam's story tonight. It hit close to home because my brother was diagnosed with Asperger's autism one year before he died at age 37.

Steve had so many of the symptoms of this condition but didn't get diagnosed until his second suicide attempt and only after I accidently came across it while researching other socialogical disorders. My mother knew there was something wrong early on (around age 2) when he started changing and becoming withdrawn, banging his head against the wall, etc... Unfortunately, the doctors told her she was the problem and that she was worrying too much.

Steve was a genius, with exceptional math and computer skills, but couldn't handle the expectations society had for him. Growing up, he always seemed to say the wrong thing at the wrong time and hung out with kids significantly younger with him as they didn't judge him. I wish we had known what was going on earlier as maybe something could have been done to make his life easier.

I wish Adam and his family well in their future together. Live each day to the fullest and love each other even more.

Tracey wrote:

September 4, 2007 11:10 PM

WE'RE JUST BEGINNING TO WEATHER THE STORM WITH MY 5 YR OLD SON. WILL THE PROGRAM BE RE-BROADCAST OR HOW CAN I RECEIVE A COPY?

AS HE GETS OLDER, I WOULD LIKE MY SON TO WATCH THIS AND KNOW THAT HE IS NOT ALONE AND THERE ARE PEOPLE WHO CAN ACTUALLY UNDERSTAND EXACTLY WHAT HE IS GOING THROUGH.

THANK YOU FOR BEING BRAVE ENOUGH TO TELL YOUR STORY.

Theresa wrote:

September 4, 2007 11:18 PM

My son is 12, started grade 7 today and very very similar to Adam. He came home today from his very first day upset because he walked around the entire lunch hour with no one to play or talk to. My daughter was giddy with the knowledge that she was finally going to see her friends again - my son the opposite.

Why is he different? He's been diagnosed since grade 1 - he interrupts, has no concept of personal space, tells anyone that will listen unusal facts (yes Ripley's Believe it or Not is usually what he is quoting) His clothes usually don't 'feel' right and he is always so loud - He is bright, very bright, reads like a fiend and can outsmart me in math calculations - and I work in accounting!

What's his future going to hold? I don't know but I hope I'm excited to be given the chance to see him grow - and develop into an unusual, eccentric much loved person.

Stephen Zylich wrote:

September 4, 2007 11:27 PM

Greetings,

Wonderful documentary that reveals the many stresses for the child, parents and siblings. Unfortunately the film ends at a dance...as if there is an end to Adam's difficulties. I think the reality is Adam needs to find a full time Group Home and if available an integrated school where he can interact with some true peers, a focused activity and possibly a friend. (This sentence was easy to write, but I do understand I it is very difficult to enact, both for parents and child!)

I wish there was a simple solution...

Shari wrote:

September 4, 2007 11:31 PM

Just saw a re-broadcast of The Boy Inside and in so many ways saw my son. As a parent of a recently diagnosed boy I am eagerly seeking knowledge and resources. If anyone knows of any AS support groups in the Toronto area or can recommend therapists or anything please contact me at sharileebell@hotmail.com.

Marion wrote:

September 4, 2007 11:33 PM

Congratulations to Ms. Kaplan, and to the CBC for featuring this excellent documentary.

As the mother of a daughter with learning disabilities and a social-anxiety disorder, I could definitely relate.I lived in fear of answering the phone during her elementary school years.

My daughter's ability to deal with the world worsened dramatically in adolescence, resulting in several hospitalizations, and ultimately a year in a mental hospital. Her ultimate diagnosis? Bipolar disorder.

Now its the mental health system we battle in order to receive appropriate care and services.

One of the worst aspects of all of this? The stigma, towards us as a family, and towards her as an individual. Sometimes even from other family members.

There are so many stories I could tell now that I've put some distance between the situation and myself. Time heals, or at least offers some clarity.

Best wishes to all families whose children present unusual challenges. Be brave, be strong.

Wendy Carter wrote:

September 5, 2007 2:01 AM

My 13 yr old son has AS as well as Tourettes. Alex is so much like Adam, just not as violent towards people. I understand how you feel. Thank you for helping understand AS better.

James wrote:

September 5, 2007 6:32 AM

This particular documentary had a profound effect on me because I myself recently received a diagnosis of Aspergers Syndrome.

I first scoughed at the idea because I had this vision in my head of people with Aspergers being mathematic or scientific genii, making up for any problems they encountered with sheer brute strength of mind.

I never envisioned an individual that doubted their own abilities, a person who may have at one point even been open to the possibility that they were retarded. I discussed my particular abstractions with my psychiatrist who told me that everyone is different, that there is no universal standard, but rather just a set of general criterion.

I have realized that much of the general criterion used to diagnose Aspergers is negative, that doctors making a diagnosis focus on the disabling aspects, while the media on the other hand makes it out to be some sort of wonderful abnormality. As I have learned the real live truths can at times be generalized, but only to an extent.

Marianne Kaplan's documentary about Adam opened my eyes; it allowed me to draw parallels between Adam and myself. I looked at this boy and was stunned by the aspects of myself I saw in him. Inhibition had always been a problem in my youth, and I had also been very reserved at certain times.

To see Adam be very Loquacious and argumentative at one moment, and then to see him introvertive and self-obsessed reminds me of my experiences as a young man. There were times when focus was put broadening my horizons exploring this and that, and then I would come across some stumbling block either social or performance based that would have me questioning my level of functioning. I excelled at certain academic tasks like English, and at other times like with spatial geometry I would be below the standard displayed by someone who would be considered a little slow cognitively. It was always a problem being lauded as gifted or profound by certain of my teachers and peers, and being considered backwards and hopeless by a whole different branch.

This documentary helped me humanize people with Aspergers, to not just regard them as some archetype. I think by understanding the different individuals, I came to terms with the possibility that I might be on the spectrum myself, and that it made me no less of a person.

I have found that it does explain quite a bit of my struggles. It helped to explain my preoccupation with videogames, movies, and anything regarding Word War II, that at times caused me to disregard all else. I saw my inability to maintain long-term relationships in a different light. I also began to criticize my bizarre ideation of concepts without the proper focus on all factors.

Seeing Adam suffer through school unable to make friends and feeling as though everyone is abandoning him reminds me of my years in school. I could never understand why no one liked me, why they always said I talked too much, or I butted in, or I never let them take the lead. I always felt that I was being persecuted for my lack of coordination when it came to sports, or my lack of knowledge when it came to school subjects. Seeing Adam though really helped bring home the reality that a lot of my problems have to do with my own attitudes, with the way I treat others. I always accepted it as a factor, but Kaplan's documentary made me realize just how obnoxious an Aspie can be. All people are obnoxious at times, but I think it is the exuberance of it and the lack of proper understanding and motivation for actions that really sets it apart from the norm. Coming to that understanding helped me realize why everyone thought I was so childish, when I couldn't see the differences between clandestine and outright, to me it hurt all the same, and I preferred the honest approach to criticism.

As shown in the documentary the most painful part of dealing with Aspergers is the inability to internalize the advice needed to change oneself. It often feels as though you have to act against who you are, and that it is impossible to keep up with all the steps needed to normalize oneself.

I am currently nineteen and still taking high-school courses at an independent learning centre. Part of the problem is my confidence in my own abilities; seeing how I will fit in to the world and compromising with my own lofty ideals as to where I am going to be. Another major component is that I just find myself no longer caring about integration; it feels as though I have stumbled upon one too many blocks and that the objections of the people around just don't matter when compared to the burden of that everyday struggle.

At the moment I am still quite young so people around me are hopeful, but at the same time the fallouts between myself, and my parents are getting worse, and it feels as though it is unclear in which direction you should go to set your unique self forward. I know I have benefited from Marianne Kaplan's ode to her son Adam; I believe this documentary has made a pioneer like step towards broadening understanding that will help to alleviate the suffering of Aspies and others concerned with their sometimes destructive paths. I hope that in the future I can be a person who has more going for him than against him.

Pete Jarvis wrote:

September 5, 2007 8:33 AM

The film really hit home with me in an indirect way.My wife(who I'm sure will post later) is an EA who works with a six year old who has Aspbergers.We babysat 3 days every week this summer.The similarities I saw in the film were stunning to me.

I'm hoping that he progresses to the extent of some of the folks who have commented here. He is extremely bright,very good on the computer and I've been working on model kits with him to help his dexterity.He has become a part of our life,and I now understand why Adam's parents need a little time off. I just hope his teen and adult life are as good as some of the people posting here. Very moving and touching film.

Beth Sulman wrote:

September 5, 2007 9:20 AM

Watched your powerful doc last night - thank you! You did an amazing job. I so enjoyed watching you work with your son - always asking him questions, probing to get him to express his feelings. It was very helpful for me.

My son has NLD/Aspergers and had his first day of high school yesterday. He said it went well - always hard to tell, as you know.

I would be very interested in talking to parents who have teenagers with Aspergers. There's not a lot of literature out there on the subject.

Thank you again. You have a wonderful family and you are doing a great job!

Documentary Moderator wrote:

September 5, 2007 12:09 PM

This film will be repeating Saturday September 8 at 4 & 9am ET.

If you'd like to purchase a copy please visit the filmmaker's website at:
http://www.theboyinside.com/

Thanks for your ongoing interest in this film!

Alexis wrote:

September 5, 2007 1:14 PM

My son, 19, was diagnosed with PDD at the age of 5. I fluctuated between agreeing with the diagnosis but also not wanting him to be labelled because we all have to learn to deal with other people and all of us have to learn to assimilate - even if it means suppressing / modifying your innate characteristics.

My son went through hell in middle / high school d/t bullying even though the teachers did their best to prevent this. My son is one of the kindest, funniest, most loyal people I know. It breaks my heart that other people don't see this, including his own brother. He thinks the best of people until they do something overtly to show him otherwise.

I'm devastated when I see people ridiculing him for things out of his control ie his lack of coordination. Odd behaviours which when I ask him to put in context are perfectly understandable. I've often said that if more people were like him the world would be a better place. I also understand how some people with this syndrome can become aggressive towards others as a form of self defence - bullying has to be treated severely in the schools & tolerance must be taught to prevent kids from striking out at their tormentors.

I still struggle with trying to encourage him to conform in order to find the friends he desperately wants to agreeing with him that he is great the way he is and why can't people just accept him for who he is - a truly wonderful person.

Randi wrote:

September 5, 2007 2:28 PM

I just watched this documentary last night, and i think it was very well done. As a 19 year old female who grew up around people with special needs, i am very lucky to have a better understanding. I think this video should be played in all schools, and become part of the educational system nation wide.

Lora wrote:

September 5, 2007 2:45 PM

What a moving documentary. I was so engaged in the film last night, I was up all night reflecting.

Adam seems so full of potential and it's heartbreaking to see the struggle he faces day in and day out with his peers. Kids can be so cruel to each other, especially when a disorder like ASD is involved.

Films like this should be required viewing in the Ontario curriculum. Children and teens need to see the effects of bullying and how detrimental it can be to the emotional health of a child.

Again, very moving and extremely well done. Kudos. I wish you, Adam and your family all the best.

Anonymous wrote:

September 5, 2007 4:58 PM

Thank You for making a careful and caring documentary about your son. My little grandson is 4 years old and his mother is struggling to try and see if he has a real problem or not. As yet it appears he is a bit young to diagnose but your film will be so helpful to give us all ideas as to how to handle some of his actions. He is very lovable and very bright but as he is starting school soon we all worry he may experience problems because of some of his unusual behavior. Thank You again for such an intimate look at you and your son.

Sheeraz Rahim wrote:

September 5, 2007 5:22 PM

I am dad of two, older Son 6 with PDD, and younger daughter, yesterday was first day. I really like the doc. It really opened my eyes, that what kind of problems my son can face in forth coming years and, As I can see right now in his SK class, that some time after school he is very sad and off.

Some time he does not want to talk about school at all.
I am thinking some how there should be a school board policy that if a class has special needs child than there should be therapist teaching rest of the class to mingle with special needs child insetad of left him alone.

Thanks

Myrna Nelson wrote:

September 5, 2007 7:23 PM

This is the second time I've watched this doc and I will watch it again. I have a 10 year old son with ADHD and learning disabilities. I am also sure after now that he has Asperger's. I am in the process of getting him accessed and I worry if I do...what next?

Is there help for these children? Or does the 'label' ruin their lives even more? As a mother, I will do whatever I can to make sure my child is successful to his ability...but what does society have to offer him? The cruelty of fellow students who are unfamiliar with the struggles of these children is gut wrenching as a parent, yet how can one blame them? Even the teachers are uneducated and unfamiliar with ADHD and Asperger's syndrome. How can we change this? Something has got to be done!

maryam wrote:

September 5, 2007 7:42 PM

I saw your documentary last night and realized that my friend's son is exactly like Adam. My friend has all the same problems with her son who is 7 or 8 years old. She's been to Sick Kids hospital with him for a whole day of testing and I'm not certain what they told her because she didn't discuss it with me in detail, but it seems that nothing came of it.

Do you have any advice for me on how I could suggest to my friend that she have her son tested for Asperger's. I'm sure she's never heard of it and I know it's very difficult for her to think there's anything "wrong" with her child, but I know they both need some help. If anyone knows how to have someone tested for this and any resources available could you please contact me. junkers247@aol.com.
thanks.

Marianne Kaplan wrote:

September 6, 2007 12:57 PM

I am the filmmaker and I want to thank all of you for watching the film and taking the time to write in with your comments and stories. We ares a large community of families and individuals dealing with Aspergers and autism. I know from experience that parents sharing their stories and information is a powerful way of learning, and helping one another. We have discussion forums on our film's website so that we can continue this discussion in more detail and help one another. Please visit www.theboyinside.com and join the parents discussion forum, or one of the forums appropriate to your situation.

We are working on getting the DVD into Canadian schools. Any lobbying you can do as parents will help on that front. This film can make a huge difference, and has already made a huge difference when we show it to kids. In fact the ringleader of the bullies who tormented Adam watched the film and sent him the most remarkable email apologising for what his bullying did to Adam and our family. That was a massive deal for Adam and a sign to me of the potential for the film to address these issues and affect change.

Also, to those many of you asking for practical help and advice- please check out the Asperger Society of Ontario website. They are a great resource, particularly if you live in Ontario.

I look forward to continuing to get to know you at www.theboyinside.com

Kim wrote:

September 8, 2007 10:12 AM

I was able to catch some of the program and I was moved. I am able to relate to many of the issues in the documentary. I have a son who is not diganosed with Asperger's but is different and has problems relating to others. Or should I say others have issues relating to him.

I am also one parent of many who dreads the phone calls from the school or the teacher who needs a minute to say the same thing every year. But I see after reading this discussion board that I am not alone.

Thanks and maybe this is something that should be sent to all school boards across Canada in the hopes that understanding comes with knowledge.

Rolande fr Rockland, On wrote:

September 8, 2007 1:01 PM

To everyone exposed someway or another to this Syndrome.

My son is 28 yrs old and still living with us. He has succesfully graduated Magna Cum Laude and made the Dean's list 2 consecutive yrs at Ottawa U. His field of studies Chemical Engineer and biochemistry. "NOT AN EASY FEAT."

Growing up, in the 80's, he was never properly diagnosed. From reading several articals here and there, I was able to diagnose him myself, and found out later how to help him. All he needed was to write his exams in a separate room, and have extra time allowed. The University complied, and this contributed to his success.

Now he is in the job market. We think his interviewing is a reason that he has difficulty selling his tremendous skills and habilities. It is an ongoing battle for him and for us, however, he always has a positive outlook and takes it one day at a time. We are so proud of all he has accomplished. All he wants to do now, is work in a lab and find a good job. In the span of 2 yrs, he has had a lot of interviews, but never, as yet been sellected for a fulltime job.

I love this doc. on Aspergers and only hope that the T.V. networks shows it more often.

The more the people are aware of these tremendous individuals, the more their life will be understood, and made easier for them their famillies and the people around. The main problem is awareness and understanding.
I believe your doc. is the right step in this direction.
A parent who understands
Rolande

Diane wrote:

September 8, 2007 4:44 PM

Wow! My husband caught just a part of the show and what he heard before he saw it made him double take as he knew our daughter was asleep. Our 9 year old daughter has almost identical traits as Adam.

From what my husband said I can't wait to watch it myself in October when it comes on again. We have been struggling daily since birth with her behaviours. Ready to give her away at times. I know that sounds harsh but when everything you do does nothing and gets you nowhere, what is left? I have cried endlessly about "what are we doing wrong" "what did we do wrong". Yet in the same breath she is as sweet as can be!! Friends sympathize with you but nobody i think really understands.

We have read everything there is to read about all different types of disorders trying to find help to deal with her. Nothing was ever as on the mark as this is. She has never been diagnosed with anything, we were never really looking for a diagnosis even though we always knew she was "different" "going to be something "or "challenging" (at times, many times, that is an understatement) we just wanted help to deal with her behaviour. We have always been told that's just her personality.

Well after my husband told me about the show i looked into Aspergers and am shocked with the similarities and have a meeting set up with the school teacher, psycologist, counselor, and principal, due to our daughters behaviours we try and brainstorm ideas to help her cope at school and at home. I am printing off some information for them and i will be making an appointment with my family doctor to discuss this further.

I am fighting back tears thinking that we might finally get some specific help and I GREATLY feel everything you all feel and have felt, whether our daughter is diagnosed or not, my husband, myself and our 16 year old daughter deal with the same, daily, all day! Thank you for sharing your story and to you all that posted comments, thank you too!! Diane

Bj wrote:

September 8, 2007 5:05 PM

I am an Educational Assistant who is working with an Aspergers boy in grade 9. I was with him in grade 8.
I enjoyed the documentary and wish it could be viewed by every teacher in every school.

Is there any chance of this? or at least for our school?
What are some of the "better" books for reading about Aspergers?
Thanks.

Rodney Clark wrote:

March 24, 2008 6:05 PM

I am moved by this boy and his Mother. Such enormous intelligence ... I agree that many of the world's great minds were just like him. It does make sense or we would be all be able to see things beyond our noses.

Catherine Merlin wrote:

March 24, 2008 6:23 PM

I just saw the movie and I cried so much...because my son is now 25, (ADHD they said!). He went through terrible bullying and lack of understanding from the 'authority' of his age (parents & schools & councellors), until he quit and has kept going from one job to another or periods of unemployment and just left home in a huff after a culmination of screaming matches and power struggles... and yes how can I stop interfering when there's so much to tell him so that he doesn't get hurt... Anything but this pain...and you are alone, he is alone ... Maybe a lesson to the people around is educating ourselves on how to be more tolerent and accepting of our differences...and find a support system that allows them, us, to be the best they,we, can be, rather than the worst due to the intense pressure cooker they feel inside their body after years of loneliness and feeling unaccepted from everywhere. My son hates himself and as a mother though he calls for help sometimes 3 times a day...can do nothing right to help him progress...any progress... now he's out again... I'm worried

Kevin wrote:

March 24, 2008 10:58 PM

I have a cousin who has been diagnosed recently with Asperger and this documentary has really let me understand how he sees and functions in the world. Great work.

on a separate note, there is an individual, Jonathan Howard, who will be running across Canada starting March 25th, 2008 to raise awareness and funds for Autism spectrum disorders (ASD) which Asperger's is a part of. The run starts in St. John's NL and ends in Victoria, BC in November. If you would like information and how to donate to the cause please visit runthedream.ca after March 25th where donations can be made though partnership with the the Autism Society of Canada.

Carole Kincaid wrote:

March 9, 2009 2:13 PM

I too would like a copy of the movie. I am currently in discussion with my 7th grade son's teachers about how to help the students understand my son's issues and stop the teasing. They are concerned to say anything for fear it will only make it worse. My son's response was "it can't get any worse". He has ADD, turrets, OCD and LD and was board-line asperger syndrome. Maybe the movie would be a good way to educate.

THIS FILM CAN BE PURCHASED AT THE FILMMAKER'S WEBSITE:
http://www.theboyinside.com/
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